Six Days, One Mission: Raising Lupus Awareness Through the Virtual 6 Challenge
Jill, a lupus warrior dedicated to making a difference, has participated in the Virtual 6 Challenge every year since it began six years ago. Through her journey with lupus, she has found strength, support and a sense of community in the event. Here are her reflections on what the challenge means to her.
When were you diagnosed with lupus? How long did it take you to get diagnosed?
I was diagnosed with lupus overlap syndrome over five years ago. It took three years and three doctors to finally receive a diagnosis. I was having joint pain, fatigue, headaches, rashes, and cardiac symptoms and it was a relief to know what was the cause. As many lupus patients know, we don’t always look sick, and it can be challenging at times to navigate the healthcare system.
How did you come across the Lupus Foundation of America?
I was diagnosed during the beginning of the COVID lockdown, so the Lupus Foundation of America (LFA) website was my greatest source of information and support. I cannot thank the LFA enough because it was a tough time for me. I was having virtual doctor’s visits and feeling rather isolated from the medical community’s support. The LFA health education specialists and national and local chapter personnel were outstanding. I’m in contact with those LFA members to this day and consider them friends!
What inspired you to participate in the Virtual 6 Challenge?
The Virtual 6 Challenge was a big goal for me five years ago. I had been recovering from pericarditis, so I had to just do a little walk each of the 6 days during the challenge. It was a great experience to have the support of family, friends, the LFA team (Coach Stacey!), and online teammates during the event. My family and friends each took turns walking slowly with me and it was a bright experience in a very difficult year for me.
What is your favorite part(s) of participating in the Virtual 6 (V6) Challenge?
Each year during the V6, I look forward to catching up with the LFA V6 team, cheering on the online V6 members and continuing to do what I can to honor the lupus warrior I am on those 6 days with my family and friends.
Why should others get involved with raising lupus awareness?
I am an LFA Ambassador now and enjoy raising awareness about lupus. Lupus needs earlier detection and more effective treatments! The money raised during the V6 Challenge supports patient education and resources as well as research. Every dollar helps! I’m looking forward to the V6 Challenge 2025 and to continue raising awareness and funds to help patients like me.
Join Jill and hundreds of other lupus warriors, friends and family members for the Virtual 6 Challenge, June 24-29. Complete your 6 miles over 6 days however and wherever you choose, all while fundraising and raising lupus awareness. Register today! lupus.org/Virtual6.