Providing Answers, Support and Hope in Missouri, Southern Illinois, & Kansas
Lupus: Ask the Experts is a series of live educational teleconferences and pre-recorded webcasts on a variety of topics designed to provide you with important information about living with lupus. Don’t miss this opportunity to learn from some of the world’s leading lupus experts from the comfort and privacy of your home.
Live teleconferences last one hour and are accessible via a toll-free number. Teleconferences will also be recorded and posted online. Pre-registration is required. Call-in/log-in information will be provided to all registrants one week before the event.
Eating Smart for & Healthy Heart 02.28.17
with Emily Rubin RD, LDN, Registered Dietitian
Thomas Jefferson University Division of Gastroenterology and Hepatology
Heart disease and stroke are typically associated with risk factors like advancing age, smoking, gender and high blood pressure. However, these factors do not fully explain the increased risk of heart disease and stroke for people with lupus. In fact, research has shown that having lupus, and undergoing treatment can, in itself, be a substantial risk factor for cardiovascular disease. You are not powerless though! One positive lifestyle change you can make to reduce your risk is to eat smart for a healthy heart. Join us and learn more about eating wisely!
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An Overview of Social Security Disability Benefits
With: Andrew Salata, Public Affairs Specialist, Social Security Administration
The presentation will cover an overview of Social Security Disability, from how individuals become eligible for benefits to how to complete the filing process. The presentation will review additional considerations for women receiving Social Security, and how Social Security assists families.
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With: Dr. Namieta Janssen, Rheumatologist from Houston, TX
This presentation is an overview on how clinical trials work, why it's beneficial to participate, and the latest trials focused on treatment for lupus.
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Teens with Lupus: Transitioning into Adulthood
With: Austin Dalrymple, DO; Pediatric Rheumatologist & Assistant Professor of Internal Medicine and Pediatrics, Saint Louis University and SSM Health Cardinal Glennon Children’s Hospital.
As a teenager living with lupus, learning how to take charge of one’s own healthcare will assist with better health outcomes as an adult. Teens with lupus and their parents will learn more about this transitional time and receive helpful tips and tools to prepare teenagers with lupus to successfully manage their illness through the adult years.
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Cardiovascular Disease and Lupus
With George Stojan, M.D.
Heart disease is a major complication of lupus and is now a leading cause of death among people with lupus. There are several ways to decrease your risk for developing lupus-related disease, including reporting changes in symptoms to your doctor right away and having and understanding of the major risk factors. This teleconference will address everything you need to know about how to live heart healthy with lupus.
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Think Again: Coping with Lupus Fog
With Pamela Thorpe, M.D. FACP, Lupus Survivor since 2001, Currently Medical Director of Pharmacovigilance in the Pharmaceutical Industry since 2007
As many as half of all people with lupus describe feelings of confusion, fatigue, memory loss, and difficulty expressing their thoughts. This collection of symptoms is termed cognitive dysfunction. Learn more about "lupus fog", its symptoms and treatment options.
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Reiki and It's Effects On Lupus
With Bryce Goebel, LRMT, Empowering You to Heal Description
Stress in those living with lupus affects the mind, body, and spirit in negative ways. Reiki treats the whole person, including body, emotions, mind, and spirit, creating many beneficial effects that include chronic pain relief, reduction of negative side effects, and relaxation. Join us to learn about Reiki and how to use it to help manage your stress throughout your whole self.
The Holistic Approach to Diet and Lupus
With Carrie Holley-Hurt, Holistic Health Coach
In this teleconference, Carrie Holley-Hurt will talk about the connection between diet and inflammation, and provide practical tools so you can create a diet that works for you by improving your quality of life.
With Stacy Ardoin, MD, adult and pediatric rheumatologist, OSU Wexner Medical Center, and Nationwide Children’s
Lupus is a complex and multifaceted disease. It is difficult to diagnose because each person has different symptoms of varying degrees and they mimic many other diseases. The diagnosis can take years to confirm. Join us as a lupus expert discusses the process of making a lupus diagnosis. The presentation will provide an overview of the ACR criteria, lupus signs and symptoms, and what a physician considers before making a diagnosis.
With Samuel Pegram, M.D., Rheumatologist, The Rheumatic Disease Clinic of Houston
We know more about lupus research today than we did 10 years ago. Join us for this Ask the Experts Session and hear about the latest in lupus research.
With Sofia Chaudhry, M.D., Adjunct Assistant Professor, Department of Dermatology, Saint Louis University School of Medicine
Approximately 2/3 of people with lupus will experience some type of effect on their skin. Learn about skin rashes and the impact of sun exposure on lupus patients. Basic treatment options and measures that can be taken to help prevent lupus skin rashes will be discussed.
With Iris Zink, MSN, RN, ANP-BC, RN-BC
Sexual problems are frequent in many people with chronic diseases. Join Iris Zink as she discusses maintaining a healthy intimate relationship despite lupus.
Tools for Living Well with Lupus
With Bené E. Williams, LMSW
Wellness can be defined as an “active process of becoming aware of and making choices toward a healthy and fulfilling life.” Learn tips and how to live well with lupus through self-management skills including communication, stress reduction, physical activity, a healthy diet, and personal responsibility.
With Brian Poole, Ph.D., Associate Professor, Brigham Young University
Life with lupus can be challenging. With symptoms that come and go, disease flares and remissions, and the uncertainty of what each day may bring, it’s normal to experience feelings of fear, frustration, anger, or sadness. However, there is a difference between temporary negative feelings and negative feelings that become overwhelming and long-lasting, which may signal a serious but treatable illness. Join us to learn more about depression and lupus, when to seek professional help, and how to recognize and properly treat symptoms.
Lupus and Pregnancy
With Dr. David Gazeley, MD, Rheumatologist, Froedtert and the Medical College of Wisconsin
Pregnancy is no longer considered an impossibility if you have lupus. Advancing technology and a better understanding of the disease and its effects on the boy have improved pregnancy outcomes over the last 40 years. Join us for this session to learn more about lupus and pregnancy.