Louise Vetter
President & Chief Executive Officer
Louise Vetter is a mission-driven leader with more than 25 years of experience raising funds and growing health-focused nonprofits to increase care and accelerate therapeutic solutions for patients. She joins the Lupus Foundation of America after a fifteen-year tenure as President & CEO of the Huntington’s Disease Society of America (HDSA), the largest public non-profit devoted to the fight against Huntington’s disease (HD), a rare neurodegenerative condition. At HDSA, she led the expansion of the Society’s impact with new programs to remove barriers to accessing support and clinical resources, improve physician understanding, and support scientific innovation to bring new treatments to HD families.
Before HDSA, Louise served as President & CEO of the American Lung Association of New York where she oversaw statewide advocacy, education and research programs on a variety of lung health issues, including asthma, environmental health and tobacco control. Notably, she led the American Lung Association’s response to the air quality crisis following the 9-11 attack in NYC. Prior to her transition to the nonprofit field, she worked in the Healthcare practice at Fleishman Hillard Communications conducting media relations and public awareness campaigns, as well as crisis communication support to clients in the biotech and pharmaceutical industries.
Ms. Vetter currently serves on the Board of the National Health Council and is an Emeritus Board Member of the American Brain Coalition.