NC Chapter Lupus Media Library
Throughout the state of NC, we provide in-person educational opportunities by way of workshops and conferences for patients, caregivers, and the medical community. The presenters for these seminars are professionals in their field of expertise and offer a unique opportunity to learn valuable information to equip individuals in their daily journey with Lupus. We have developed a robust media library of videos, audio, and presentations from past educational opportunities that you can access at any time from the comfort of your home.
LFANC Statewide Support Group Meeting - November 2022
Topics covered during this interactive webinar include: National Family Caregivers Month, Opportunity to Give Feedback on Aurinia’s New Consumer Activation Campaign, The Value of a Support Group in Your Lupus Journey, and Discussion on the Value of Faith-Based Partnerships for Patients Living with Lupus Nephritis.
22nd NC Lupus Educational Summit - "Thriving On"
The last two years have been challenging, and no one knows that better than our Lupus Thrivers. As we move forward, learning from all that we have experienced, our theme this year will be...Thriving On! Each session will incorporate this theme as we all learn to navigate this ever-changing world. We won't just survive...WE WILL THRIVE ON!
21st NC Lupus Educational Summit - "Body Of Mine"
Kimberly McClean - poet, teacher, LFANC Advocacy Bureau volunteer and Lupus Thriver - is our keynote speaker. Kim shares her journey with Lupus as well as her poem, Body of Mine - which inspired this year's Summit Theme. She has a remarkable and moving story, and her poem illustrates what living with Lupus is like.
20th NC Lupus Educational Summit - "A Whole New World"
For the 20th NC Lupus Educational Summit, our theme is "A Whole New World". With COVID-19 impacting every single person we serve, things are so different than this time last year. While we are all navigating this new world, we want to make sure it is easier than ever to connect Lupus Thrivers with information & resources that can support their journey.
18th Annual NC Lupus Educational Summit
Keynote Speaker: Sara Gorman
Sara Gorman was diagnosed with Systemic Lupus at the age of 26. Determined not to let Lupus rewrite her plans for the future, she fought to maintain her demanding work schedule, busy social life, and invincible attitude. But after four years of running her body into the ground, she realized she was fighting life, not living it. Committed to working with the disease rather than against it, she made it her top priority to start living well, despite Lupus. Her book, Despite Lupus: How to Live Well with a Chronic Illness, details the steps it took to reach that goal. Letting go of her career, postponing plans for pregnancy, and cutting off her hair (or what she had left) are just a few of the monumental steps she took to reach her goal of living well, despite Lupus.
18th Annual NC Lupus Educational Summit - Managing Lupus Symptoms
Description: Stress in those living with Lupus affects the mind, body, and spirit in negative ways. Reiki treats the whole person, including body, emotions, mind, and spirit, creating many beneficial effects that include chronic pain relief, reduction of negative side effects, and relaxation. Join us to learn about Reiki and how to use it to help manage your stress throughout your whole self.
17th Annual NC Lupus Summit - Coping With Lupus Session
Description: Learn about coping mechanisms that affect your mind, body and soul to help limit or avoid the burdens, discomforts, and difficulties Lupus can cause.
Presenter: Lauren Phillips
Topic: DoTerra Essential Oils
Join us to hear Lauren Phillips from DoTerra Essential Oils discuss essential oils and how they benefit Lupus patients.
Presenter: Christine Faragallah
Topic: Diet & Nutrition
Join us to hear Christene Faragallah from St. Hildegard Nutrition about the best practices when it comes to managing your diet and Lupus.
Presenter:Tammy Schoolcraft
Topic: Reiki
Join us to hear Tammy Schoolcraft, a Reiki certified master, as she discusses the benefits of using Reiki as a wellness tool.
17th Annual NC Lupus Summit - Pain Management
Description: Learn how to manage the severe and chronic pain through medication, therapies, and coping strategies.
17th Annual NC Lupus Summit - Keynote Speakers
Description: Jenny Prince, LFANC Chapter President & CEO, facilitated a conversation on breaking down the barriers with Lupus advocates, Monica Scott-Osinowo & Myrah Lykes at the 17th Annual NC Lupus Summit.
16th Annual NC Lupus Summit - Keynote Address, Sherie Pearsall, Major-Special Operations Bureau, Charlotte-Mecklenburg Police Department & Lupus Advocate
Description: SHERIE E. PEARSALL has been a member of the Charlotte-Mecklenburg Police Department since March of 1994 (recruit class #114) and has served in numerous capacities. She has served as a community police officer and supervisor, bike officer, member of the SWAT team as a tactical team member and supervisor, N.C. General Instructor, Internal Affairs Division Detective Sergeant, Watch Commander, Division Commander, Service Area Major, Executive Director for Training and Recruitment, Chief of Staff, Director of the Office of Professional Responsibility and now currently serves as the Special Operations Commander.
In June of 2008, at the age of 37 and after years of suffering from unexplained pain, Sherie was diagnosed with SLE, and her new normal began.
16th Annual NC Lupus Summit - Working With Your Pharmacist
Presenter: Susan Corbett, PharmD, RPh, and Lupus Thriver
Description: Learn how to manage those different medications and communicate with an important member of your health care team, your pharmacist. Also learn about all the different medications you need to manage day to day and learn tips on avoiding side effects and drug interactions.
16th Annual NC Lupus Summit - A Look Into The Future: Preparing For A Successful Transition Into Adult Care
Presenters: Rebecca Sadun, MD, Duke University and Shelia Rittgers, MSW, LCSW, Duke University
Description: From the 16th Annual NC Lupus Summit. This session is designed for adolescent and young adult Lupus patients, along with their loved ones, who are in the process of thinking about the upcoming move from pediatric care to the adult-oriented medical system.
2016 Empowerment Series - Lupus & The Skin
Presenter: Manika Zeri, MD, NorthEast Rheumatology
Description: Two-thirds of individuals with Lupus will develop some type of skin disease. This session will focus on the environmental effects, symptoms, prevention methods, and treatment associated with Lupus and the skin and other skin-related issues.
2016 Empowerment Series - Doctor-Patient Communication
Description: Part of thriving with Lupus is effectively communicating with the members of you health care team so that your care is managed better and in the end, you feel better. Often times though, we feel hurried and rushed in our doctors appointments and forget what we intended to ask them to about a symptom we experienced since visiting them. Join us to lean about the role you play in communicating with your physicians and how to adequately prepare for you appointments.
15th Annual NC Lupus Summit - Clinical Trials: Dispelling The Myths
Moderator: Brenda Meier, RN
Panelists: Serena McPherson, Josh Durham, and Catherine Steehler
Description: Hear from trial participants and their coordinator about the clinical trial experience, why participation is important, and what you need to take into consideration.
15th Annual NC Lupus Summit - Keynote Address: Shanelle Gabriel, HBO Def Poet / Singer / Activist
Description: Shanelle was diagnosed with Lupus in the summer of 2004. Using that as her fuel, she decided she would pursue her dreams and encourage others who have obstacles in their path to do the same. Since then, she's performed at numerous walks for Lupus, spoken at the National Press Room for the National Institute of Health, performed at Capitol Hill, and been featured in several publications regarding her life as an artist with Lupus.
15th Annual NC Lupus Summit - Lupus & Pregnancy
Presenter: Dr. Megan Clowse, Duke Lupus Clinic
Description: Pregnancy is no longer considered an impossibility if you have Lupus. However, certain factors can put you at high risk. Learn how to best prepare for your current or possible pregnancy.
15th Annual NC Lupus Summit - Lupus & Children
Presenter: Dr. Thomas Griffin- Carolina Medical Center
Description: Educate yourself about your child's diagnosis and their particular needs.
15th Annual NC Lupus Summit - Awards (2015)
Description: The Chapter Awards include three areas of honor: Champion Award, the Mission Award, and the Ruth and Jim Banbury Volunteer of the Year Award. CHAMPION AWARD - Phil Tackett of Charlotte. MISSION AWARD - Debbie Rognstad of Waxhaw. RUTH AND JIM BANBURY VOLUNTEER OF THE YEAR AWARD - Heather Edwards of Asheville.
14th Annual NC Lupus Summit - Awards (2014)
Description: The Chapter Awards include three areas of honor: Champion Award, the Mission Award, and the Ruth and Jim Banbury Volunteer of the Year Award. CHAMPION AWARD - Susan Corbett of Burlington. MISSION AWARD - Kim McLean of Fayetteville. RUTH AND JIM BANBURY VOLUNTEER OF THE YEAR AWARD - Tammy Scott of Wilmington.
14th Annual NC Lupus Summit - Keynote Address: Dr. Joan T. Merrill
Description: Joan T. Merrill, MD, is Head of the Clinical Pharmacology Research Program at the Oklahoma Medical Research Foundation (OMRF), OMRF Professor of Medicine and Adjunct Professor of Pharmacy at the University of Oklahoma Health Sciences Center. She is the Medical Director of the Lupus Foundation of America and is an active member of the Systemic Lupus International Collaborating Clinics and the Lupus Clinical Trials Consortium. She is the Principal Investigator of the Oklahoma Lupus Cohort which includes more than 500 patients with Lupus who have donated serial blood samples and clinical information over the past decade. She has been the Principal Investigator of a number of clinical trials studying new treatments for Lupus, with a research focus on understanding the individual biology of a patient in order to optimize treatment selection and dosing strategies. She has more than 150 publications.
14th Annual NC Lupus Summit - Lupus 101
Presenter: Dr. Jennifer Rogers - UNC-Thurston Arthritis Research Center
Description: This session is designed for both the newly diagnosed patient and anyone needing a refresher in the basics. Learn about current, medically accurate information on Lupus, its symptoms, treatments and coping techniques.
14th Annual NC Lupus Summit - Lupus & The Gastrointestinal System
Presenter: Dr. Mary Anne Dooley, Professor of Medicine, UNC Kidney Center
Description: People with Lupus may experience problems in any area of the GI system, including the surrounding organs such as the liver, pancreas, bile ducts, and gallbladder. Not all of these problems will be directly related to Lupus disease activity; some may be traced to side effects of medication you take or other diseases that may be present. Learn more during this session.
14th Annual NC Lupus Summit - Complementary & Alternative Treatments
Presenter: Dr. Evangeline Lausier - Duke Integrative Medicine Center
Description: In addition to medications and traditional medical care from doctors, there is an increased interest in other healing practices to try to improve overall health. These diverse therapies -- used either with conventional medicine (complementary) or instead of conventional medicine (alternative) -- include homeopathy, chiropractic, naturopathy, massage therapy, meditation, and supplements. Learn more about scientific research regarding specific types of complementary and alternative medicine in this session.
14th Annual NC Lupus Summit - Creative Outlets
Presenters: Kim McLean and Daniela Serna
Description: Many people find that expressing themselves through a creative outlet such as writing, art, or music, helps them feel better, especially if they are living with a chronic illness. Hear from a panel of thrivers whom have each found their own unique way of coping with Lupus.
- Kim McLean, Poem "I Don't Look Like What I've Been Through" Video
- Daniela Serna, Dance Video
- View Kim McLean's Poem
13th Annual NC Lupus Summit Awards (2014)
Description: The Chapter Awards include three areas of honor: Champion Award, the Mission Award, and the Ruth and Jim Banbury Volunteer of the Year Award. CHAMPION AWARD – Betty & Bill Scales of Winston-Salem. MISSION AWARD – Heather Edwards of Asheville. RUTH AND JIM BANBURY VOLUNTEER OF THE YEAR AWARD – Vickie Addison of Charlotte.
13th Annual NC Lupus Summit - Lupus & Overlapping Disease (2014)
Presenter: Dr. Charles A. Withers, III, Northeast Rheumatology
Description: Although Lupus most often occurs alone, many people with Lupus also have symptoms characteristic of one or more of the other connective tissue diseases. In this circumstance, a physician may use the term "overlap" to describe the illness. Learn about several well-recognized overlaps that may affect people with Lupus and how they are treated and managed.
13th Annual NC Lupus Summit - Thriver - Caregiver Panel (2014)
Moderator: Cindy Coney
Panelists: Timeka Griffin, Robert Griffin, Crystal Cates, Ruby Mason
13th Annual NC Lupus Summit - Lupus & The Cardiopulmonary System (2014)
Presenter: Dr. Joseph Shanahan, Shanahan Rheumatology & Immunotherapy
Description: The heart and lungs are frequently affected in people with Lupus. Complications in these organs can cause a variety of problems, ranging from mild to serious or even life-threatening. Learn about common symptoms and treatments available.
Removing the Mask of Lupus - Lupus & The Kidneys (2012)
Presenter: Dr. Lisa Nanovic Nephrology & Hypertension Consultants, PA
Description: Did you know that an estimated 40% of all people living with Lupus will develop kidney complications? This educational workshop addressed complications, medical evaluation, and treatment options as it relates to kidney involvement in individuals living with Lupus.
12th Annual NC Lupus Summit - Lupus 101 (2012)
Presenter: Stacy Kennedy, MD, MBA of Rowan Diagnostic Clinic
Description: This recording is designed for both those newly diagnosed and anyone needing a refresher in the basics on Lupus. Learn more about current, medically accurate information on Lupus, its symptoms, treatments and coping techniques.
12th Annual NC Lupus Summit - Lunchtime Keynote (2012)
Presenter: Sandra Raymond, National President & CEO, Lupus Foundation of America
Description: National President and CEO of the Lupus Foundation of America, Sandra Raymond speaks on the advances of medical research in Lupus and charges the audience to be activities for changes in Lupus treatment and research.
12th Annual NC Lupus Summit - Opening Keynote (2012)
Presenter: Sandra Dubose-Gibson
Description: Former Mrs. Black NC and recording artist, Sandra Dubose-Gibson speaks on "unlocking your treasure within" to be a better you.
12th Annual NC Lupus Summit - Awards (2012)
Description: Champion Award – Crystal Campagna; Mission Award – Barbi Manchester; Volunteers of the Year (renamed the Ruth and Jim Banbury Award) – Ruth and Jim Banbury.
Lupus & The Skin (Part 2 of 2) - 06/23/12
Presenter: Ronea Harris-Stith, Presbyterian Dermatology South
Description: Approximately two-thirds of people with Lupus will develop some type of skin disease or Cutaneous Lupus. Learn about the forms of skin Lupus, treatments for Cutaneous Lupus and other skin problems that can occur when you have Lupus.
Lupus & The Skin (Part 1 of 2) - 06/23/12
Presenter: Ronea Harris-Stith, Presbyterian Dermatology South
Description: Approximately two-thirds of people with Lupus will develop some type of skin disease or Cutaneous Lupus. Learn about the forms of skin Lupus, treatments for Cutaneous Lupus and other skin problems that can occur when you have Lupus.
Is It Foggy In Here? Cognitive Dysfunction & Lupus - 10/08/11
Presenter: Dr. Sarah Cook, Clinical Neuropsychology Service, Duke University Medical Center
Description: You are not alone, as many as half of all people with Lupus report experiencing some type of cognitive complication, commonly referred to as “Lupus fog”. Learn more about central nervous system, cognitive dysfunction related to Lupus, and what you can do to cope with these symptoms.
The Singing Patient, Carla Ulbrich - 10/08/11
Presenter: The Singing Patient, Carla Ulbrich
Description: Author of How Can You NOT Laugh at a Time Like This? Singer-songwriter and Lupus Thriver Carla Ulbrich says that having a sense of humor is essential to health. Carla has found laughter to be a lifesaver during tough times. Under the stress of multiple illnesses and constant health ''care'', Ulbrich one day snapped and became the Singing Patient. She channeled her hard won victories and set about to reclaim her health.
A Gut Feeling - Lupus & The Gastrointestinal System - 10/08/11
Presenter: Joseph Shanahan, MD, Shanahan Rheumatology & Immunotherapy
Description: The GI system is your body’s pathway for taking in, processing, and disposing of everything you eat and drink. People with Lupus may be affected by problems in any area of the GI system, including the surrounding organs such as the liver, the pancreas, the bile ducts, and the gallbladder. Learn about common gastrointestinal complications in people with Lupus, including those caused by the disease and medications, and information on how to treat these symptoms.
Eating Down Inflammation Workshop (Part 2) - 08/20/11
Presenter: Charlie Reid, Chef & Amorette Hinely-Reid, Nutrition and Labeling Specialist, Compass Group
Description: This workshop covered nutritional information as it relates to inflammation issues with Lupus. Also included food preparation demonstration using ingredients that can help reduce inflammation and increase bone density, including recipes and shopping tips to take home.
Eating Down Inflammation Workshop (Part 1) - 08/20/11
Presenter: Amorette Hinely-Reid, Nutrition and Labeling Specialist, Compass Group
Description: This workshop covered nutritional information as it relates to inflammation issues with Lupus. Also included food preparation demonstration using ingredients that can help reduce inflammation and increase bone density, including recipes and shopping tips to take home.
Bones Of Lupus Workshop - 03/26/11
Presenter: Maria Little, PT, Presbyterian Osteoporosis Center
Description: This Educational workshop focused on Osteoporosis and other musculoskeletal complications of Lupus. It included information on risks, detection & surgery.
What A Pain! A Lupus & The Body Workshop - 01/22/11
Presenter: Leslie Ray, Physical Therapist, Presbyterian Rehabilitation Center
Description: More than 90% of people with Lupus will experience joint and or muscle pain related to their Lupus. This educational workshop addresses management of severe and chronic pain associated with Lupus including medications, therapies and coping strategies to help manage pain.
Overlapping Lupus Mixed Connective Tissue Diseases - 2011
Presenter: Christine Miserandino
Description: This Presentation was 2nd Part of the Keynote Address at our 2011 Annual NC Lupus Summit. Author of The Spoon Theory, Christine Miserandino, is a writer, blogger, speaker and patient advocate from NY. She also happens to be someone who is living with Lupus. Her writing has been featured in numerous newspapers, magazines, medical newsletters and television media. Read more about Christine. Christine considers herself a "Professional Patient" and shares tips, tricks and even mistakes she has made along the way.
A Spoonful Of Hope - My Experience With Lupus
Presenter: Christine Miserandino
Description: This Presentation was 1st Part of the Keynote Address at our 2011 Annual NC Lupus Summit. Author of The Spoon Theory, Christine Miserandino, is a writer, blogger, speaker and patient advocate from NY. She also happens to be someone who is living with Lupus. Her writing has been featured in numerous newspapers, magazines, medical newsletters and television media.
Lupus 101 (Part 2 of 2) - 03/27/10
Presenter: Jane Box, M.D., Box Arthritis & Rheumatology of the Carolinas
Description: This video is designed for both the newly diagnosed patient and anyone needing a refresher in the basics. The program offers current, medically accurate information on Lupus, its symptoms, treatments, and coping techniques.
Lupus 101 (Part 1 of 2) - 03/27/10
Presenter: Jane Box, MD, Box Arthritis & Rheumatology of the Carolinas
Description: This video is designed for both the newly diagnosed patient and anyone needing a refresher in the basics. The program offers current, medically accurate information on Lupus, its symptoms, treatments, and coping techniques.
Long Term Affects Of Lupus & Medications - 09/12/09
Presenter: Alan Elliott, MD, FACR Arthritis and Osteoporosis Consultants of the Carolinas
Description: This is a video of our Long Term Affects of Lupus & Medications Workshop at the Lupus Foundation of America's 2009 Annual Symposium on Lupus which took place on 9.12.09. Patients who have had Lupus over many years have concerns about long-term effects of the disease and the medications that are often prescribed for Lupus. This workshop will address the questions surrounding those concerns.
Lupus & The Musculoskeletal System - 09/12/09
Presenter: Lisa Criscione-Schreiber, MD, Asst. Prof. of Medicine - Rheumatology & Immunology, Duke University Medical Center
Description: This is a video of our Lupus & the Musculoskeletal System Workshop at the Lupus Foundation of America, Piedmont Chapter's 2009 Annual Symposium on Lupus, which took place on 9.12.2009. It is not uncommon for people with Lupus to experience muscle aches and pain or have inflammation of certain muscle groups, which cause weakness and loss of strength. This workshop will address these symptoms which more than 90% of people with Lupus experience at some point during the course of their illness.
Transforming Obstacles Into Opportunities - Thriving With Lupus - 09/12/09
Presenter: CJ Scarlet, Author, Speaker, and 20-year Lupus thriver
Description: The Lupus Foundation of America, Piedmont Chapter presents the Keynote Address from the 2009 Annual Symposium on Lupus by CJ Scarlet, Author, Speaker, & 20-Year Lupus "Thriver".
Highlight On Men With Lupus - Steve Helms & His '67 Cougar
Description: Video highlighting Men living with Lupus. Steve Helms, and his wife Candice, discuss living with Lupus and the car they are raffling off to raise funds to fight this disease, a fully restored 1967 Cougar. Video services provided by Jeff Childers of Carolinas Medical Center.
Research Bringing Down The Barriers - 11/01/08
Presenter: Mary Anne Dooley, MD, MPH Thurston Arthritis Research Center University of North Carolina at Chapel Hill
Description: Barriers are being brought down that have obstructed basic biomedical, clinical, epidemiological, behavioral, and translational research for decades, and what that holds for the future of Lupus research.
2008 Volunteer Of The Year - 11/01/08
Description: Lupus Foundation of America Piedmont Chapter 2008 Volunteer of the Year Patricia Dunn.
Getting To The Heart Of It - Cardiovascular Disease In Lupus - 11/01/08
Presenter: Joseph Shanahan, MD, Shanahan Rheumatology & Immunotherapy
Description: Learn more about how Lupus can affect the cardiovascular system, what treatment options are available, and steps you can take to help prevent and control serious complications.
Pain Management Workshop (Part 3/3) - 07/19/08
Presenter: Leslie Ray, PT
Description: Part 3/3 - An educational program on severe and chronic pain associated with Lupus. Learn about medications, therapies, and coping strategies to help manage pain.
Pain Management Workshop (Part 2/3) - 07/19/08
Presenter: Dr. Mary Tota-Faucette, Licensed Psychologist
Description: An educational program on severe and chronic pain associated with Lupus. Learn about medications Therapies and coping strategies to help manage pain.
Pain Management Workshop (Part 1/3) - 07/19/08
Presenter: Sharon O'Brien PA-C
Description: An educational program on severe and chronic pain associated with Lupus. Learn about medications Therapies and coping strategies to help manage pain.