Increasing Minority Participation and Awareness in Clinical Trials (IMPACT) for Lupus

Increasing Minority Participation and Awareness in Clinical Trials (IMPACT) for Lupus is a one-year grant to the Lupus Foundation of America by the Office of Minority Health as part of a larger federal initiative, the National Health Education Lupus Program. The goal of IMPACT for Lupus is to work hand-in-hand with national and community partners (called the IMPACT for Lupus Action Partnership) to develop and test a new education model aimed at raising awareness of lupus clinical trials among minority populations affected by lupus. From August 2016 to June 2017, IMPACT for Lupus developed a faith-based education model and materials for African Americans with lupus.

Between September and November 2017, the education model was implemented and evaluated in three sites:

1. Atlanta, Georgia in collaboration with the Georgia Chapter of the Lupus Foundation of America
2. Charleston, South Carolina in collaboration with the Medical University of South Carolina
3. Fort Washington, Maryland in collaboration with Carlden Publishing

The IMPACT for Lupus Action Partnership (as of September 1) includes the following representatives:

• A lupus patient
• Clinical trial and Lupus experts:
  • Richard Furie, MD
  • Sue Manzi, MD
  • Brad Rovin, MD
• The American Academy of Family Physicians
• The Center for Information and Study on Clinical Research Participation
• Bristol-Myers Squibb
• UCB

For additional support, please contact the Lupus Foundation of America’s health educators. Questions are answered in English and Spanish.

This project is supported by Grant Number 1 CPIMP161122-01-00 from the U.S. Department of Health and Human Services (HHS) Office of Minority Health (OMH). Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the HHS, OMH.

Page last updated September 1, 2017.