Catherine R. - Diagnosed at age 22
It took me roughly four years to get diagnosed with lupus. I had seen several rheumatologists, given my history with Hashimoto's, Celiac, and Raynaud's, but none listened to my symptoms. Other doctors suspected lupus, but it was hard to find a rheumatologist who would listen. Due to my other autoimmune conditions, it's hard to pinpoint my first symptom, but the red flag was low-grade fevers. I was hospitalized four times in six months with severe chest pain and trouble breathing.
Since then, I now experience the same fevers, lung issues, nausea, joint pain, butterfly rashes, and kidney involvement, making it hard to sit or exercise. I wish others understood that lupus is more than minor aches; it's debilitating pain that affects my ability to work and study, especially with brain fog.
Managing this in college is challenging, as many haven't been understanding, adding to the stress. I am determined to pursue my law career, relying on strategies like avoiding stress, mindful eating, and hot showers. My friends, family, and especially my boyfriend Noah, have been by my side, offering inspiration and attending events. I'm grateful for my diagnosis and hope to be a voice for others struggling with lupus.