Worth the Watch and Listen Webinars and Teleconferences | Southeast
Did you know we archive all of our webinars and teleconferences in our Lupus & You Library? Don't miss the opportunity to learn from some of the world's leading lupus experts on a variety of topics designed to provide you with important information about living with lupus. from the comfort and privacy of your home. They are worth the watch (or listen)!
During this webinar, we will discuss the basics of lupus and its impact on the immune system and how the kidneys can be affected. We will share lifestyle tips and how to monitor your disease.
Don't miss out on this informative webinar where Dr. Catherine Sims walks you through the phases of reproduction from to birth control to pregnancy, and ultimately menopause. Learn how to discuss with your doctors how to properly time pregnancy to minimize complications, what birth control is safe for to take, and how to manage menopause.
During this webinar, we will explore what exactly health journaling is and how it can impact your lupus life. By documenting your symptoms, medication usage, and overall health status, you can track changes in your condition over time and identify patterns or triggers that may be causing certain symptoms or flare-ups. Additionally, health journaling can help you better communicate with your healthcare team by providing them with detailed information about your symptoms and treatment progress. we will provide tips and strategies for using health journaling in your day-to-day life as well!
Don't miss this opportunity to learn more about health journaling and how it can help you manage your lupus.
Watch the full recording of the Lupus & You: Answers. Advocacy. Action. educational event and vaccines and the immune system that took place on June 8, 2022. Hear from lupus experts on gut health and nutrition, research on the microbiome and lupus, tips for healthy eating, and learn how you can engage in advocacy and awareness in your community.
This Lupus & You™, a free virtual educational program for individuals with lupus, their families, and friends, was hosted on Saturday, April 30th from 10:00 AM- 11:15 AM EST. This virtual event had a discussion on Skin and Hair Loss given by Dr. Jun Kang. As well as a presentation from Arnita Roberts-Christie, Patient Engagement Liaison at GSK, who shared tools for managing lupus and practicing disease self-management. Thank you to GSK for sponsoring this program.
Lupus is a complicated disease that affects different people in different ways. For some, lupus can be mild — for others, it can be life threatening. During this presentation we will discuss what Lupus and Nephritis is, who gets lupus, signs and symptoms of both, as well as, how the disease effects the immune system. We will discuss how to monitor your symptoms and ways to better manage the disease. We will also touch on journaling and navigate lupus warriors on how to access resources for further education. This presentation will bring understanding and awareness along with useful information to better navigate living with lupus.
Matters of the Heart: Lupus and the Heart Webinar on Thursday, March 24 at 7pm EST with Dr. Brittney Weber and Dr. May Choi. You will learn about how lupus impacts the heart, what surveillance is needed and ways to take care of your heart as well as the latest research findings that pertain to lupus and the heart. There will be a Q&A section and the end of the webinar.
Watch the full recording of the Lupus & You: Answers. Advocacy. Action. educational event and vaccines and the immune system that took place on March 15, 2022. In the recording, you'll hear from lupus experts on vaccines and the immune system, the importance of vaccines for people with lupus, vaccine safety, and learn how you can engage in advocacy and awareness in your community.
Join us for a discussion about lupus nephritis and a different treatment option with Dr. Gail S. Kerr, MD. We will also hear from a person living with lupus nephritis who will share their personal journey.
This webinar with be an interactive presentation on what is it to live with anxiety in conjunction with lupus. Working through anxiety as it pertains to day to day living with lupus, learning coping skills to deal with this as well as learning a new normal post-pandemic will be the focus.
Presented by Linda Brecher, DO, FACOI, FACR Associate Professor of Medicine, Rowan University School of Osteopathic Medicine. This in-depth discussion will explain what osteoporosis is, who's at risk, how to prevent it, treatment options, and more.
| Medicare 101-Navigating your Healthcare Coverage Evon Peterson will be discussing the different coverages available through Medicare and the supplements which are available for add-on. She will help you be more successful at minimizing out of pocket expenses by breaking down what is covered by each part so that you can navigate the program and select a policy that is best suited to your needs. |
Description: Up to 70% of all chronic diseases are associated with problem areas in the oral cavity. The oral cavity remains a focal point for acute and chronic inflammation including bacterial yeast, fungus, and viral pathogens, which sets up a pattern for disease and illness. The oral cavity remains deeply connected to each organ system and all cranial nerves. It remains the most overlooked aspect of health and wellness. Therefore, balancing is critical. For this reason, comprehensive dental detoxification and rehabilitation become crucial in establishing health and wellness. Learn more about lupus and your oral health with Dr. David DiGiallorenzo on this webinar. Dr. DiGiallorenzo has specialty training in periodontics and implantology from the University of Pennsylvania and over two decades of periodontics and dental implant expertise.
Join us as we hear from Dr. Pegram and Dr. Michaud from Advanced Pain Care in Central Texas. They will discuss lupus, treatments, and options to manage pain caused by lupus. Dr. Pegram has built his reputation on quality patient care while Dr. Michaud started as a nurse before becoming a doctor. This has helped him to have compassion and better care for his patients.
Our final webinar will focus on the non-medical parts of treating lupus and YOU, including a look at the social determinants of health, complementary medicine, nutrition, exercise, and other ways to stay healthy while living with lupus. The presentation by Austin Dalrymple, DO, a pediatric rheumatologist and an assistant professor of pediatrics at Saint Louis University School of Medicine and SSM Health Cardinal Glennon Children’s Hospital, will be followed by a panel discussion featuring Dr. Dalrymple and Jennifer Sherker, PhsyD. The suggested audience is adolescents with lupus and their parents or guardians.
A lupus diagnosis often brings many physical changes including hair loss, a common side effect of lupus. Join us for this in-depth webinar featuring Dr. Amy McMichael, a Dermatologist at Wake Forest Baptist Medical Center as she discusses how hair and scalp disorders present in patients with systemic and/or cutaneous lupus and approaches to treatment for all lupus-related scalp and hair disorders. She will also review other forms of hair loss that may complicate lupus-related hair loss.
Preparing for adulthood is hard enough- add lupus into the mix and there’s much more to consider. Catch the next installment of our Navigating the Pediatric Lupus Journey series: Preparing for Life as a Young Adult, on Wednesday, February 10. Led by Dr. Joyce Chang, a pediatric rheumatologist focused on the transition from adolescence to adulthood, you’ll learn more about the changes ahead as they relate to lupus, including college, jobs, dating, and more.
Presented by: Aliciee Griffith, BSN, BS, RN - In this program, Aliciee discusses lupus and its various manifestations. She demonstrates how to take back control by building a care team of physicians, loved ones, and community resources, including Us in Lupus. Aliciee empowers us to participate in our own care and shares insights on communication, record keeping, and sun protection strategies.
Lupus is met with unpredictability, which often leads to stress and anxiety. Focus on what you can control in the meantime. A flare plan will allow you to organize everything ahead of time in case of an emergency. Learn the effective points of a flare plan and receive additional resources to get started, including a guided worksheet to fill out your own flare plan. Additionally, a rheumatologist will be answering your questions about flares, like when to go to the hospital vs. when to call your doctor.
Clinical trials are an essential part of how advances are made in medicine. Current knowledge of lupus is built upon the results of yesterday’s clinical trials. But what exactly is a clinical trial? How do you find more information about clinical trials or go about enrolling in a clinical trial? Dr. Caricchio is passionate about lupus research and will discuss clinical trials at length, including what to expect in a clinical trial, the challenges facing rheumatologists and patients alike, and how to enroll in one.
This webinar is designed for parent(s)/guardians of children or teens diagnosed with lupus or those needing more information. The webinar will feature an in-depth look at lupus after the shock of the initial diagnosis with Kelly Rouster-Stevens, Md, PharmD pediatric rheumatologist from Children’s Healthcare of Atlanta and a panel discussion that includes Dr. Rouster-Stevens, Andrea Knight MD, MSCE at Children’s Hospital of Philadelphia, and parents of children with lupus.
This webinar is designed for parent(s)/guardians of newly diagnosed children or teens with lupus or those needing more information. The webinar will feature an overview of lupus with Jon (Sandy) Burnham, MD, MSCE, Clinical Director of the Division of Rheumatology, Director of the Lupus Program and Co-Director of the Lupus Integrated Nephritis Clinic at Children's Hospital of Philadelphia and a panel discussion that includes Dr. Burnham, a psychologist and parents of children with lupus.
The effects of lupus are always on the back of your mind, making you feel like you are losing control. From unpredictable symptoms, fatigue, and pain to worry, anxiety and depression, Dr. Cristina Drenkard will provide self-management skills to help you successfully manage daily disease-related challenges and improve your quality of life.
"What's the right diet? What should I avoid? Does what I eat really affect inflammation?" Food is something we're so familiar with, yet it can be such a confusing thing to navigate—especially with lupus. From reducing inflammation to maintaining energy, certified dietician Gretchen Spetz, MS, RDN, LD, will share ways to use diet as a tool in managing lupus. Join us for this webinar as we address one of our most frequently asked questions: "Is there a lupus diet?"
Exercise helps keep our bones and muscles strong. In Exercise for Lupus Patients physical therapist, Dr. Robert Voorhees discusses the benefits of an active lifestyle and offers concrete ways for lupus patients to adopt an exercise regimen. Dr. Voorhees balances notes of caution and potential mobility limitations (e.g., bed rest, wheelchair use, etc.) to empower us to move our bodies safely and live life to the fullest.
Exercise helps keep our bones and muscles strong. In Exercise for Lupus Patients physical therapist, Dr. Robert Voorhees discusses the benefits of an active lifestyle and offers concrete ways for lupus patients to adopt an exercise regimen. Dr. Voorhees balances notes of caution and potential mobility limitations (e.g., bed rest, wheelchair use, etc.) to empower us to move our bodies safely and live life to the fullest.
Exercise helps keep our bones and muscles strong. In Exercise for Lupus Patients physical therapist, Dr. Robert Voorhees discusses the benefits of an active lifestyle and offers concrete ways for lupus patients to adopt an exercise regimen. Dr. Voorhees balances notes of caution and potential mobility limitations (e.g., bed rest, wheelchair use, etc.) to empower us to move our bodies safely and live life to the fullest.
Dr. Steven Neucks, a rheumatologist in Indianapolis who is board certified in pain management, will be discussing the multiple non-opioid options available for managing the pain associated with living with lupus.
When it comes to exercising with an autoimmune disease, it can be difficult to find what works best for you. Maybe you feel hindered by chronic pain and the thought of going to the gym is too much to handle. Maybe you are an avid exerciser but somehow you still end up with a significant amount of flare-ups. Learn what factors are important to consider when exercising with an autoimmune disease; from exercise, intolerance to which kind of exercise is best. Certified Personal Trainer and Strength and Conditioning Specialist, Daniela Spear, will cover the ins and outs of a healthy exercise routine that will benefit you while living with an autoimmune disease. Lupus and Exercise:
Depression and Lupus Fog: What is the difference?
Depression and anxiety are related and common emotional states. Approximately 3-7% of the general population experience depression and anxiety that are related to mental disorders. This talk will focus on identifying depressive symptoms and disorders. I will also distinguish between depression and “lupus fog,” and discuss coping strategies for both issues.
Presenter: Dr. Sharon Boyd-Jackson, Ph.D.
With warmer weather comes an increasing concern for people experiencing skin involvement in lupus. Dr. Victoria Werth will present an overview of lupus and the skin, including the subtypes of skin lupus, proper sun protection, and treatment options.
Presenter: Dr. Victoria Werth, MD
Lupus and the Skin: A Helpful Guide Presentation
Lupus may affect many aspects of a patient's life, including the ability to work. Disability insurance policies are designed to provide benefits for people living with severe chronic illness, and understanding your rights is the first step to maximizing your security. This presentation will help you navigate the private and group disability maze- including eligibility, filing, and qualifying.
Presenter: Alicia Paulino-Grisham
Dr.Gupta will discuss the various aspects of the kidneys and how lupus can affect them. She will cover kidney function, how kidneys can be damaged, how it is diagnosed and treatments.
Presenter: Dr. Arti Gupta, MD
Learn about the various cardiovascular disease conditions that affect people with lupus, how to prevent heart disease while living with lupus and learn more about Rheumatologic disease as a risk factor for future cardiovascular disease in women.
Presented by Deborah Crabbe, MD Cardiologist, Temple University Hospital Professor, Medicine, Lewis Katz School of Medicine at Temple University
Learn about the different parts of the immune system that can be affected in lupus and about how lupus medications work to suppress the immune system in order to control the disease. From B cells to T cells and everything in between, this will be an "Immunology 101" session. No background in biology required.
Presented by Dr. Rebecca Sadun
Dr. Davila has a passion to treat rheumatic diseases that are often difficult to treat and even diagnose. Join us as she discusses the importance of finding a rheumatologist by going over the history of lupus, signs, symptoms, treatments, and diagnosis.
Presented by Dr.Lesley Davila M.D.
Description: If your lupus symptoms become so severe that you are unable to work, you should consider filing for Social Security Disability benefits. This presentation covers what lupus patients need to know about their rights and the filing process.
Presenter: Thomas J. Giordano, JR., Esquire
Description: Good nutrition is an important part of an overall treatment plan for lupus. Learn how to create a nutritious, well-balanced, and varied diet that takes into account the profound effects of a network as complex as the immune system.
Presenter: Lindsay Sappah, RD LDN CNSC
Dr. Samuel Pegram is a rheumatologist in Houston, Texas and is affiliated with multiple hospitals in the area. He is the principal investigator and founder of Rheumatic Disease Clinical Research Center and has practiced Rheumatology for more than 20 years. Dr. Pegram has built a reputation for treating complicated cases of lupus in addition to quality clinical trials. He will be presenting on the latest lupus research that is being conducted and some of the typical requirements for enrolling to participate in a clinical trial.
Presenter: Dr. Samuel Pegram
The medications prescribed to treat lupus can range from mild to extremely strong, but all medications have side effects. Most often, several medications are used in combination to control lupus. Learn about effective communication with your doctor to ensure the best treatment plan for you.
Presenter: Dr. Mohammad Kamran
"Systemic Lupus Erythematosus, a multi-organ system autoimmune disease, has been shown to affect ethnic minorities more frequently and more severely than other populations. Minorities are 3-4 times more likely to develop SLE and twice as likely to experience severe manifestations such as kidney disease. Finding personalized approaches to treating minority patients starts with quality research. In our talk with Dr. Ashira Blazer, an academic rheumatologist at NYU Langone Hospital, we will explore the presumed causes and contributors to disparities in SLE, future directions in management, and tools to help even the most vulnerable of patients live well."
Presenter: Dr. Ashira Blazer
Lupus affects each of us—patients and loved ones alike—and too often we struggle daily with this illness. Join Dr. Phillips for Coping with Lupus—a conversation about living better with this devastating disease. Hear techniques explained and learn new ideas and strategies, which can be tailored to meet your individual needs.
Presenter: Dr. Robert H. Phillips
Dr. Antonelli is a rheumatologist in the Division of Rheumatology at Case Western Reserve University Department of Medicine at Metro Health Medical Center in Cleveland, Ohio. She is an Assistant Professor of Medicine at Case Western Reserve University. She is a passionate physician that cares greatly for the lupus community. She will focus the presentation on the correlations of Joint replacement with Lupus. The goal is to give us a better understanding of the topic and learn how to live well with lupus.
Presenter: Dr. Maria Antonelli, M.D.
Joint Replacement with Lupus Presentation
This presentation will look at the features of systemic lupus erythematosus and those of people whose diagnosis overlaps with other autoimmune diseases including rheumatoid arthritis, dermatomyositis or polymyositis, scleroderma, and Sjogren syndrome. We will cover how they are similar and different, and the approaches to treatment.
Presenter: Dr. Kathleen M. O'Neil, MD
Lupus and Overlapping Connective Tissue Disease
Teens with Lupus: Transitioning into Adulthood
With: Austin Dalrymple, DO; Pediatric Rheumatologist & Assistant Professor of Internal Medicine and Pediatrics, Saint Louis University and SSM Health Cardinal Glennon Children’s Hospital.
As a teenager living with lupus, learning how to take charge of one’s own healthcare will assist with better health outcomes as an adult. Teens with lupus and their parents will learn more about this transitional time and receive helpful tips and tools to prepare teenagers with lupus to successfully manage their illness through the adult years.
Download the presentation (PDF)
With: Dr. Namieta Janssen, Rheumatologist from Houston, TX
This presentation is an overview on how clinical trials work, why it's beneficial to participate, and the latest trials focused on treatment for lupus.
Download the presentation (PDF)
Workplace Accommodation for Individuals with Lupus
With: Attorney R. Patrick White, LFA Georgia Chapter Board Chair
People living with lupus may not know their rights in the workplace. This teleconference will address how to work with your employer to put together a plan to prioritize your health issues and determine the types of accommodation you may need at your place of work.
An Overview of Social Security Disability Benefits
With: Andrew Salata, Public Affairs Specialist, Social Security Administration
The presentation will cover an overview of Social Security Disability, from how individuals become eligible for benefits to how to complete the filing process. The presentation will review additional considerations for women receiving Social Security, and how Social Security assists families.
Download the presentation (PDF)
Lupus and Female Issues: From Puberty to Menopause
7:00 pm – 8:00 pm EST
with Amber R. Cooper, MD, MSCI
Women living with lupus face a variety of challenges regarding their reproductive health. Dr. Amber R. Cooper, board certified in Obstetrics and Gynecology and Reproductive Endocrinology and Infertility, will discuss how lupus, and the medication used to treat the disease, can affect menstrual function, pregnancy, contraception, menopause, and fertility.
Listen to the Recording:
Pediatric Lupus
With Dr. Reema Syed
Pediatric Rheumatologist
SSM Cardinal Glennon Children's Medical Center
Hearing that you have lupus, or that your child has it, can be very frightening. However, by working closely with your health care team, you can learn how to best take care of yourself and the special needs of a child with lupus. Learn about what to expect in the future for a child living with lupus.
Download Dr. Reema Syed's presentation
Vivir con Lupus
with Leyka Barbosa, M.D., F.A.C.R.
North Texas Joint Care, P.A.
Esta teleconferencia educativa incluye una introducción al manejo efectivo de la enfermedad y lo básico sobre el Lupus para alguien recién diagnosticado o persona que se pueda beneficiar. Recibirá información médica exacta y al día sobre el Lupus, sus síntomas, tratamientos y técnicas para combatir la enfermedad.
Download Dr. Leyka Barbosa's presentation
Lupus and Women's Issues
with Anupama Shahane, MD, MPH
Assistant Professor of Clinical Medicine
Division of Rheumatology
University of Pennsylvania
More than 90 percent of people with lupus are women between the ages of 15 and 45. Having lupus increases your risk of other health problems that are common in women. Women living with lupus also face a variety of concerns from pregnancy to body image issues. Learn how to live better with lupus and cope with issues many women face after a lupus diagnosis.
Download the presentation (PDF)
Lupus and Overlapping Disease
with Mark Box, MD
Kansas City Internal Medicine, St. Joseph Health Center
Although lupus most often occurs alone, many people with lupus also have characteristics of one or more of the other connective tissue diseases, such as scleroderma or rheumatoid arthritis. This is called overlap disease. Learn more about common connective tissue diseases that may overlap with a lupus diagnosis and how they are treated and managed.
Download the presentation (PDF)
With Brian Poole, Ph.D., Associate Professor, Brigham Young University
Life with lupus can be challenging. With symptoms that come and go, disease flares and remissions, and the uncertainty of what each day may bring, it’s normal to experience feelings of fear, frustration, anger, or sadness. However, there is a difference between temporary negative feelings and negative feelings that become overwhelming and long-lasting, which may signal a serious but treatable illness. Join us to learn more about depression and lupus, when to seek professional help, and how to recognize and properly treat symptoms.
Learn about the various cardiovascular disease conditions that affect people with lupus, how to prevent heart disease while living with lupus and learn more about Rheumatologic disease as a risk factor for future cardiovascular disease in women.
Presented by Deborah Crabbe, MD Cardiologist, Temple University Hospital Professor, Medicine, Lewis Katz School of Medicine at Temple University
Tools for Living Well with Lupus
With Bené E. Williams, LMSW
Wellness can be defined as an “active process of becoming aware of and making choices toward a healthy and fulfilling life.” Learn tips and how to live well with lupus through self-management skills including communication, stress reduction, physical activity, a healthy diet, and personal responsibility.
With Iris Zink, MSN, RN, ANP-BC, RN-BC
Sexual problems are frequent in many people with chronic diseases. Join Iris Zink as she discusses maintaining a healthy intimate relationship despite lupus.
With Sofia Chaudhry, M.D., Adjunct Assistant Professor, Department of Dermatology, Saint Louis University School of Medicine
Approximately 2/3 of people with lupus will experience some type of effect on their skin. Learn about skin rashes and the impact of sun exposure on lupus patients. Basic treatment options and measures that can be taken to help prevent lupus skin rashes will be discussed.
With Samuel Pegram, M.D., Rheumatologist, The Rheumatic Disease Clinic of Houston
We know more about lupus research today than we did 10 years ago. Join us for this Ask the Experts Session and hear about the latest in lupus research.
With Stacy Ardoin, MD, adult and pediatric rheumatologist, OSU Wexner Medical Center, and Nationwide Children’s
Lupus is a complex and multifaceted disease. It is difficult to diagnose because each person has different symptoms of varying degrees and they mimic many other diseases. The diagnosis can take years to confirm. Join us as a lupus expert discusses the process of making a lupus diagnosis. The presentation will provide an overview of the ACR criteria, lupus signs and symptoms, and what a physician considers before making a diagnosis.
The Holistic Approach to Diet and Lupus
With Carrie Holley-Hurt, Holistic Health Coach
In this teleconference, Carrie Holley-Hurt will talk about the connection between diet and inflammation, and provide practical tools so you can create a diet that works for you by improving your quality of life.
Reiki and It's Effects On Lupus
With Bryce Goebel, LRMT, Empowering You to Heal Description
Stress in those living with lupus affects the mind, body, and spirit in negative ways. Reiki treats the whole person, including body, emotions, mind, and spirit, creating many beneficial effects that include chronic pain relief, reduction of negative side effects, and relaxation. Join us to learn about Reiki and how to use it to help manage your stress throughout your whole self.
Wellness Coach: A Healthy Approach to Lupus
With Erica Daniel – CEO & Founder of Elnspire LLC, Speaker, Author, Coach
Committing to a healthy lifestyle can be overwhelming. Join Erica Daniel as she provides you with a process to work actively towards a better quality of health by providing support, encouragement, education, and tools.
Think Again: Coping with Lupus Fog
With Pamela Thorpe, M.D. FACP, Lupus Survivor since 2001, Currently Medical Director of Pharmacovigilance in the Pharmaceutical Industry since 2007
As many as half of all people with lupus describe feelings of confusion, fatigue, memory loss, and difficulty expressing their thoughts. This collection of symptoms is termed cognitive dysfunction. Learn more about "lupus fog", its symptoms and treatment options.
Cardiovascular Disease and Lupus
With George Stojan, M.D.
Heart disease is a major complication of lupus and is now a leading cause of death among people with lupus. There are several ways to decrease your risk for developing lupus-related disease, including reporting changes in symptoms to your doctor right away and having and understanding of the major risk factors. This teleconference will address everything you need to know about how to live heart healthy with lupus.
Download the presentation (PDF)
Let's Talk about Lupus and the Eyes
With Careen Lowder, MD, PhD, Cole Eye Institute; Cleveland Clinic
The latest in prevention, diagnostics and treatment options for a wide spectrum of eye conditions - from the routine to the complex. Learn why Cleveland Clinic Cole Eye Institute is ranked No. 1 in Ohio and No. 8 in the U.S. by U.S. News & World Report.
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