Providing Answers, Support and Hope in Georgia
Let's Talk About It
Let's Talk About It, formerly known as Ask the Experts is a series of monthly educational webinars and teleconferences designed to provide you with important information about living with lupus and better managing your symptoms. Live teleconferences last one hour and are accessible through a toll-free phone number.
All registered participants will receive call-in/log-in information before the event along with any support materials.
Wednesday, September 14, 2022 | 7:00 – 8:00 p.m. EST
Join us for an empowering discussion on Inflammation and SLE pathology of diseases. Inflammation is one of the body’s main defense mechanisms used to indicate that there is a problem that needs urgent solving. Science is helping us understand better the pathology of the disease and how it affects the inflammatory changes in the body that may be related to diabetes, increased risk of heart attacks, strokes and kidney disease.
Understanding Lupus Environmental Triggers
January 2022
The goal is to provide a better understanding of the topic and how to live well with lupus.
Let's Talk About It: Understanding Lupus Environmental Triggers
Lupus and the Skin
February 2022
One of the tell-tale signs of lupus is a butterfly-shaped rash across the cheeks and bridge of the nose. Although, lupus affects each person differently, and can affect the skin in different ways. Join us as we learn from Dr. Victoria Werth, a Professor of Dermatology and Medicine at the University of Pennsylvania School of Medicine and Chief of the Division of Dermatology at the Philadelphia Veterans Hospital as she walks us through photoprotection, treatment of skin lupus, and new therapies on the horizon for skin lupus.
Lupus Employment Issues in the Workplace
March 2022
Many people living with lupus struggle to maintain full-time employment. Their symptoms might require them to take time off from work to go to doctor's appointments or to recover from flares. Lupus symptoms may also make it difficult for individuals who are working to fulfill all their job responsibilities. Join Human Resources Attorney Ann Plunkett for this important webinar to help you understand the Family and Medical Leave Act (FMLA) and the Americans With Disabilities Act (ADA), and how to work with your employer to put together a plan to prioritize your health issues and determine the types of accommodation you may need.
Tools for Managing Stress and Thriving This Holiday Season
December 2021
We all feel stressed from time to time, but the holidays offer their own special stressors that can make us feel even worse - gift shopping, family obligations, finances, and perhaps, the grief and sadness that accompanies the loss of a loved one. Stress can be unhealthy. So, what can you do to avoid or minimize some of these holiday stress inducers? Join Dr. Adair F. White-Johnson, best-selling author and motivational speaker as she provides tips , tools, and strategies for thriving this holiday season.
Navigating Social Security Disability Benefits
November 2021
If you or someone you know becomes unable to work due to a disabling medical condition, Social Security Disability (SSDI) benefits may be available to help replace lost income on a temporary or permanent basis. Applying for SSDI can be a long and complicated process, but don’t feel overwhelmed! Join us for a brief education about Navigating the Social Security Disability Benefits process and the support that is available.
Self Management
October 2021
Shivani Garg, MD, Medical Director at the UW-Madison Lupus & Lupus Nephritis Clinics, discusses Lupus Self-Management Tools. In this presentation, Dr. Garg will outline common lupus characteristics and triggers, how to avoid them, and how to self-monitor lupus flares. tation will also discuss behavioral tips to avoid triggers, and medications that aid in treatment. By incorporating self-monitoring practices and increasing stress-reduction and mindfulness activities, lupus patients can increase positive outcomes and better manage their disease.
Lupus and Depression
September 2021
Depression and anxiety are two of the most common emotions we experience as individuals. The National Institute of Mental Health estimates that approximately 7% of all adults in the U S will experience depression in their lifetime. The number of adults subjected to anxiety is almost three times that of depression. However, studies show that individuals with SLE have even higher numbers of these emotions. Experiencing depression and /or anxiety on a daily, weekly or even monthly basis while also dealing with an autoimmune disease such as Lupus can be daunting for any individual.
Mental Health and Lupus
August 2021
This webinar will be an interactive presentation on what is it to live with anxiety in conjunction with lupus. Working through anxiety as it pertains to day to day living with lupus, learning coping skills to deal with this as well as learning a new normal post-pandemic will be the focus.
Medicare 101
July 2021
Evon Peterson will be discussing the different coverages available through Medicare and the supplements which are available for add on. She will help you be more successful at minimizing out of pocket expenses by breaking down what is covered by each part so that you can navigate the program and select a policy that is best suited for your needs.
Oral Health
June 2021
Up to 70% of all chronic diseases are associated with problem areas in the oral cavity. The oral cavity remains a focal point for acute and chronic inflammation including bacterial yeast, fungus and viral pathogens, which sets up a pattern for disease and illness. The oral cavity remains deeply connected to each organ system and all cranial nerves. It remains the most overlooked aspect of health and wellness.
Therefore, balancing is critical. For this reason, comprehensive dental detoxification and rehabilitation becomes crucial in establishing health and wellness.
Learn more about lupus and your oral health with Dr. David DiGiallorenzo on this webinar. Dr. DiGiallorenzo has specialty training in periodontics and implantology from the University of Pennsylvania and over two decades of periodontics and dental implant expertise.
Bone Health
June 2021
Presented by Linda Brecher, DO, FACOI, FACR Associate Professor of Medicine, Rowan University School of Osteopathic Medicine. This in depth discussion will explain what osteoporosis is, who's at risk, how to prevent, treatment options and more.
Pain Management and Lupus
May 2021
Join us as we hear from Dr. Pegram and Dr. Michaud from Advanced Pain Care in Central Texas. They will discuss lupus, treatments, and options to manage pain caused by lupus. Dr. Pegram has built his reputation on quality patient care while Dr. Michaud started as a nurse before becoming a doctor. This has helped him to have compassion and better care for his patients.
Lupus Related Hair Disorders
March 2021
A lupus diagnosis often brings many physical changes including hair loss, a common side effect of lupus. Join us for this in-depth webinar featuring Dr. Amy McMichael, a Dermatologist at Wake Forest Baptist Medical Center as she discusses how hair and scalp disorders present in patients with systemic and/or cutaneous lupus and approaches to treatment for all lupus-related scalp and hair disorders. She will also review other forms of hair loss that may complicate lupus related hair loss.
Lupus and Exercise
October 2020
Pediatric Lupus: What to Expect (as part of the Navigating the Pediatric Lupus Journey series)
September 2020
This webinar is designed for parent(s)/guardians of newly diagnosed children or teens with lupus or those needing more information. The webinar will feature an overview of lupus with Jon (Sandy) Burnham, MD, MSCE, of the Children's Hospital of Philadelphia and a panel discussion that includes Dr. Burnham, psychologist Dr. Christina Rouse of CHOP and parents of children with lupus- Rodney Ross, Angela Chapson, and Linda Vasquez.
Depression and Lupus Fog: What is the Difference?
September 2020
Presenter: Dr. Sharon Boyd-Jackson, Ph.D.
Depression and anxiety are related and common emotional states. Approximately 3-7% of the general population experience depression and anxiety that are related to mental disorders. This talk will focus on identifying depressive symptoms and disorders. I will also distinguish between depression and “lupus fog,” and discuss coping strategies for both issues.
Before and After a Lupus Diagnosis: Merging Lifestyles and Taking Control
August 2020
Presented by Dr. Cristina Drenkard
The effects of lupus are always on the back of your mind, making you feel like you are losing control. From unpredictable symptoms, fatigue, and pain to worry, anxiety and depression, Dr. Cristina Drenkard will provide self-management skills to help you successfully manage daily disease-related challenges and improve your quality of life.
Lupus Diet: Myths & Facts
July 2020
Presented by Gretchen Spetz, MS, RDN, LD
What are the best foods to eat when you have lupus? Is there one "lupus diet" to rule them all? How important is nutrition when it comes to lupus? Gretchen Spetz addresses common concerns about the lupus diet in this webinar.
Lupus and Men
June 2020
Presented by Dr. Sam Lim, MD
1 in 10 people living with lupus are male. Learn more about how lupus manifests in men, the unique challenges it presents, and how men with lupus can take charge.
Lupus and the Skin: A Helpful Guide
May 2020
Presented by Dr. Victoria Werth, MD
With warmer weather comes an increasing concern for people experiencing skin involvement in lupus. Dr. Victoria Werth will present an overview of lupus and the skin, including the subtypes of skin lupus, proper sun protection, and treatment options.
Lupus and the Skin: A Helpful Guide Presentation
Disability: Navigating the Maze
April 2020
Presented by Alicia Paulino-Grisham
Lupus may affect many aspects of a patient's life, including the ability to work. Disability insurance policies are designed to provide benefits for people living with severe chronic illness, and understanding your rights is the first step to maximizing your security. This presentation will help you navigate the private and group disability maze- including eligibility, filing, and qualifying.
Lupus and the Kidneys
March 2020
Presented by Dr. Arti Gupta, MD
Dr.Gupta will discuss the various aspects of the kidneys and how lupus can affect them. She will cover kidney function, how kidneys can be damaged, how it is diagnosed and treatments.
Lupus and Overlapping Disease
December 2019
This presentation will look at the features of systemic lupus erythematosus and those of people whose diagnosis overlaps with other autoimmune diseases including rheumatoid arthritis, dermatomyositis or polymyositis, scleroderma, and Sjogren syndrome. We will cover how they are similar and different, and the approaches to treatment.
Presenter: Dr. Kathleen M. O'Neil, MD
Lupus and Overlapping Connective Tissue Disease
Lupus and Joint Replacement
November 2019
Dr. Antonelli is a rheumatologist in the Division of Rheumatology at Case Western Reserve University Department of Medicine at Metro Health Medical Center in Cleveland, Ohio. She is an Assistant Professor of Medicine at Case Western Reserve University. She is a passionate physician that cares greatly for the lupus community. She will focus the presentation on the correlations of Joint replacement with Lupus. The goal is to give us a better understanding of the topic and learn how to live well with lupus.
Presenter: Dr. Maria Antonelli, M.D.
Joint Replacement with Lupus Presentation
Coping with Lupus
October 2019
Lupus affects each of us—patients and loved ones alike—and too often we struggle daily with this illness. Join Dr. Phillips for Coping with Lupus—a conversation about living better with this devastating disease. Hear techniques explained and learn new ideas and strategies, which can be tailored to meet your individual needs.
Presenter: Dr. Robert H. Phillips
Coping with Lupus Presentation
Side Effects of Medications
August 2019
Presented by Dr. Mohammad Kamran
The medications prescribed to treat lupus can range from mild to extremely strong, but all medications have side effects. Most often, several medications are used in combination to control lupus. Learn about effective communication with your doctor to ensure the best treatment plan for you.
Clinical Trials
July 2019
Presented by Dr. Samuel Pegram
Dr. Samuel Pegram is a rheumatologist in Houston, Texas and is affiliated with multiple hospitals in the area. He is the principal investigator and founder of Rheumatic Disease Clinical Research Center and has practiced rheumatology for more than 20 years. Dr. Pegram has built a reputation for treating complicated cases of lupus in addition to quality clinical trials. He will be presenting on the latest lupus research that is being conducted and some of the typical requirements for enrolling to participate in a clinical trial.
Lupus and Nutrition
June 2019
Presented by Lindsay Sappah, RD LDN CNSC
Description: Good nutrition is an important part of an overall treatment plan for lupus. Learn how to create a nutritious, well-balanced, and varied diet that takes into account the profound effects of a network as complex as the immune system.
The Role of a Rheumatologist in Treating Lupus
May 2019
Presented by Dr. Lesley Davila
Dr. Davila has a passion to treat rheumatic diseases that are often difficult to treat and even diagnose. Join us as she discusses the importance of finding a rheumatologist by going over the history of lupus, signs, symptoms, treatments, and diagnosis.
Social Security and Disability: What Every Lupus Patient Needs to Know
April 2019
Presented by Thomas J. Giordano Jr., Esquire
Description: If your lupus symptoms become so severe that you are unable to work, you should consider filing for Social Security Disability benefits. This presentation covers what lupus patients need to know about their rights and the filing process.
Lupus and the Immune System
March 2019
Presented by Dr. Rebecca Sadun
Learn about the different parts of the immune system that can be affected in lupus and about how lupus medications work to suppress the immune system in order to control the disease. From B cells to T cells and everything in between, this will be an "Immunology 101" session. No background in biology required.
Lupus and Your Heart
February 2019
Presented by Dr. Deborah Crabbe
Learn about the various cardiovascular disease conditions that affect people with lupus, how to prevent heart disease while living with lupus, and learn more about rheumatologic disease as a risk factor for future cardiovascular disease in women.
Lupus and Adolescence: An Overview, and Issues Pertaining to Transition
December 2018
With Dr. Philip Khan, MD
Lupus can interfere with an adolescent development of independence, peer relationships, and day-to-day normal activities. Adolescence is stressful for healthy teens; add the stress of living with a chronic illness and adolescence can be overwhelming. This teleconference covered an overview of issues pertaining to this transitioning period.
Lupus and Pregnancy
November 2018
With Dr. David Gazeley, MD, Rheumatologist, Froedtert and the Medical College of Wisconsin
Pregnancy is no longer considered an impossibility if you have lupus. Advancing technology and a better understanding of the disease and its effects on the body have improved pregnancy outcomes over the last 40 years.
Listen here: https://archive.org/embed/LupusAndPregnancy110618
Lupus and Depression
October 2018
With Brian Poole, Ph.D., Associate Professor, Brigham Young University
Life with lupus can be challenging. With symptoms that come and go, disease flares and remissions, and the uncertainty of what each day may bring, it's normal to experience feelings of fear, frustration, anger, or sadness. However, there is a difference between temporary negative feelings and negative feelings that become overwhelming and long-lasting, which may signal a serious but treatable illness. Join us to learn more about depression and lupus, when to seek professional help, and how to recognize and properly treat symptoms.
Tools for Living Well with Lupus
September 2018
With Bené E. Williams, LMSW
Wellness can be defined as an “active process of becoming aware of and making choices toward a healthy and fulfilling life.” Learn tips and how to live well with lupus through self-management skills including communication, stress reduction, physical activity, a healthy diet, and personal responsibility.
Lupus and Intimacy
August 2018
With Iris Zink, MSN, RN, ANP-BC, RN-BC
Sexual problems are frequent in many people with chronic diseases. Join Iris Zink as she discusses maintaining a healthy intimate relationship despite lupus.
Lupus and the Skin
July 2018
With Sofia Chaudhry, M.D., Adjunct Assistant Professor, Department of Dermatology, Saint Louis University School of Medicine
Approximately 2/3 of people with lupus will experience some type of effect on their skin. Learn about skin rashes and the impact of sun exposure on lupus patients. Basic treatment options and measures that can be taken to help prevent lupus skin rashes will be discussed.
Research Update
June 2018
With Samuel Pegram, M.D., Rheumatologist, The Rheumatic Disease Clinic of Houston
We know more about lupus research today than we did 10 years ago. Join us for this Ask the Experts Session and hear about the latest in lupus research.
Lupus: Making the Diagnosis
May 2018
With Stacy Ardoin, MD, adult and pediatric rheumatologist, OSU Wexner Medical Center, and Nationwide Children’s
Lupus is a complex and multifaceted disease. It is difficult to diagnose because each person has different symptoms of varying degrees and they mimic many other diseases. The diagnosis can take years to confirm. Join us as a lupus expert discusses the process of making a lupus diagnosis. The presentation will provide an overview of the ACR criteria, lupus signs and symptoms, and what a physician considers before making a diagnosis.
The Holistic Approach to Diet and Lupus
April 2018
With Carrie Holley-Hurt, Holistic Health Coach
In this teleconference, Carrie Holley-Hurt will talk about the connection between diet and inflammation, and provide practical tools so you can create a diet that works for you by improving your quality of life.
Reiki and It's Effects On Lupus
March 2018
With Bryce Goebel, LRMT, Empowering You to Heal Description
Stress in those living with lupus affects the mind, body, and spirit in negative ways. Reiki treats the whole person, including body, emotions, mind, and spirit, creating many beneficial effects that include chronic pain relief, reduction of negative side effects, and relaxation. Join us to learn about Reiki and how to use it to help manage your stress throughout your whole self.
Think Again: Coping with Lupus Fog
October 2017
With Pamela Thorpe, M.D. FACP, Lupus Survivor since 2001, Currently Medical Director of Pharmacovigilance in the Pharmaceutical Industry since 2007
As many as half of all people with lupus describe feelings of confusion, fatigue, memory loss, and difficulty expressing their thoughts. This collection of symptoms is termed cognitive dysfunction. Learn more about "lupus fog", its symptoms and treatment options.
Download the Presentation (PDF)
Cardiovascular Disease and Lupus
September 2017
With George Stojan, M.D.
Heart disease is a major complication of lupus and is now a leading cause of death among people with lupus. There are several ways to decrease your risk for developing lupus-related disease, including reporting changes in symptoms to your doctor right away and having and understanding of the major risk factors. This teleconference will address everything you need to know about how to live heart healthy with lupus.
Download the presentation (PDF)
Teens with Lupus: Transitioning into Adulthood
July 2017
With: Austin Dalrymple, DO; Pediatric Rheumatologist & Assistant Professor of Internal Medicine and Pediatrics, Saint Louis University and SSM Health Cardinal Glennon Children’s Hospital.
As a teenager living with lupus, learning how to take charge of one’s own healthcare will assist with better health outcomes as an adult. Teens with lupus and their parents will learn more about this transitional time and receive helpful tips and tools to prepare teenagers with lupus to successfully manage their illness through the adult years.
Download the presentation (PDF)
Clinical Trials 101
June 2017
With: Dr. Namieta Janssen, Rheumatologist from Houston, TX
This presentation is an overview on how clinical trials work, why it's beneficial to participate, and the latest trials focused on treatment for lupus.
Download the presentation (PDF)
Workplace Accommodation for Individuals with Lupus
May 2017
With: Attorney R. Patrick White, LFA Georgia Chapter Board Chair
People living with lupus may not know their rights in the workplace. This teleconference will address how to work with your employer to put together a plan to prioritize your health issues and determine the types of accommodation you may need at your place of work.
An Overview of Social Security Disability Benefits
April 2017
With: Andrew Salata, Public Affairs Specialist, Social Security Administration
The presentation will cover an overview of Social Security Disability, from how individuals become eligible for benefits to how to complete the filing process. The presentation will review additional considerations for women receiving Social Security, and how Social Security assists families.
Download the presentation (PDF)
Eating Smart for & Healthy Heart
February 2017
Presenter: Emily Rubin RD, LDN, Registered Dietitian
Thomas Jefferson University Division of Gastroenterology and Hepatology
Heart disease and stroke are typically associated with risk factors like advancing age, smoking, gender and high blood pressure. However, these factors do not fully explain the increased risk of heart disease and stroke for people with lupus. In fact, research has shown that having lupus, and undergoing treatment can, in itself, be a substantial risk factor for cardiovascular disease. You are not powerless though! One positive lifestyle change you can make to reduce your risk is to eat smart for a healthy heart. Join us and learn more about eating wisely!
Download the presentation (PDF)
Stress Management
November 2016
Presenter: Ellen Sichel, Custom Calm, LLC
It is important to understand the relationship of oral health to overall health and wellness. Join us to learn about how dental health relates to lupus and managing symptoms.
Lupus & Dental Health
October 2016
Presenter: Diane Earle, DDS, MBA, Kool Smiles
It is important to understand the relationship of oral health to overall health and wellness. Join us to learn about how dental health relates to lupus and managing symptoms.
Living a Healthy Lifestyle
September 2016
Presenter: Danine Fruge, MD, ABFP, Pritikin Longevity Center + Spa
Take charge of your daily life through proper disease management, communication, and positive lifestyle changes.
Lupus & the Bones: Diagnosing & Treating Osteoporosis
August 2016
Presenter: Kathryn M. Diemer, MD, Washington University School of Medicine in St. Louis
Women with lupus are at increased risk for osteoporosis and are nearly five times more likely to experience a fracture. Learn more about bone density, how osteoporosis is diagnosed, and the most common treatments available including calcium, vitamin D and FDA approved medications.
Finances 101: Living with a Chronic Illness
July 2016
Everyone should have a financial plan to protect themselves and their loved ones. Living with a chronic illness causes unique day-to-day and long-term financial challenges. The teleconference will empower and educate those living with a chronic illness, their loved ones and caretakers regarding ways to proactively organize their finances and strategically plan for their unpredictable circumstances.
Lupus and the Thyroid
Lupus and the Kidneys
October 2015
Speaker:Arti Gupta, M.D., Dallas Nephrology Associates, Dallas, Texas
Lupus nephritis is the term used when lupus causes inflammation in the kidneys. It is estimated that as many as 40 percent of all people with lupus will develop kidney complications that require medical evaluation and treatment. Dr. Arti Gupta will address diagnosis, monitoring, kidney complications, kidney biopsy, kidney treatment, and kidney prognosis.
Listen to the Recording:
Lupus de los Riñones
Speaker:Carlos Pancorvo, M.D., Dallas Nephrology Associates, Dallas, Texas
Lupus nefritis es el término usado cuando el lupus provoca inflamación en los riñones. Se estima que hasta el 40 por ciento de todas las personas con lupus desarrollarán complicaciones renales que requieren tratamiento y evaluación médica. El Dr. Carlos Pancorvo hablará de el diagnóstico, visitas medicas, complicaciones renales, biopsia renal, tratamiento renal y pronóstico renal.
Listen to the Recording:
Coping with Lupus
September 2015
Speaker: Robert H. Phillips, Ph. D.
When you are first diagnosed with lupus, you will hear about treatment options and the importance of preventing flares—but you may not hear that lupus can have an emotional effect on you as well. You may feel overwhelmed, frustrated, sad, and anxious, but the good news is there are ways to help you cope with those feelings. Join us for this teleconference with Robert H. Phillips, Ph.D., founder and director of the Center for Coping, author of the Coping with Lupus and Lupus Q&A books and a licensed psychologist as he addresses important questions one might have and offers practical coping strategies to help those with lupus live their lives to the fullest.
Listen to the Recording:
Lupus and Female Issues: From Puberty to Menopause
August 2015
Speaker:Amber R. Cooper, MD, MSCI
Women living with lupus face a variety of challenges regarding their reproductive health. Dr. Amber R. Cooper, board certified in Obstetrics and Gynecology and Reproductive Endocrinology and Infertility, will discuss how lupus, and the medication used to treat the disease, can affect menstrual function, pregnancy, contraception, menopause, and fertility.
Listen to the Recording:
Lupus and the Skin
July 2015
Speaker:Victoria P. Werth, MD, University of Pennsylvania School of Medicine
Approximately two-thirds of people with lupus will develop some type of skin disease, called cutaneous lupus erythematosus. Skin disease in lupus can cause rashes or sores (lesions), most of which will appear on sun-exposed areas such as the face, ears, neck, arms, and legs. Listen to hear Dr. Victoria Werth discuss how lupus can affect your skin and effective treatment options.
Listen to the Recording:
Lupus and Hair Loss
June 2015
Speaker:Angela Kyei, MD
A lupus diagnosis often brings many physical changes, including hair loss. Hair loss is a common side effect of lupus and can be caused by medications used to treat the disease. Join us to hear Angela Kyei, M.D. speak on hair loss and ways to be proactive in treating it.
Living Well with Lupus
May 2015
Speaker:Donald Thomas, M.D., FACP, FACR, CCD
Join us for this teleconference with Donald Thomas, M.D., FACP, FACR, CCD, author of “The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families” as he discusses how to live well with lupus through coping techniques, educating yourself and his “lupus secrets”.
Download Lupus Secrets Handout
Lupus and the Eyes
April 2015
Speaker: Ricardo N. Sepulveda, M.D.
Dr. Ricardo Sepulveda will discuss how autoimmune diseases including lupus affect the eyes. The effects lupus may have in and around the eyes include changes in the skin around the eyelids, dry eyes, inflammation of the white outer layer of the eyeball (scleritis), blood vessel changes in the retina, or damage to nerves in the muscles controlling eye movement and the nerves affecting vision.
Disability and Returning to the Workplace
March 2015
Speakers: Jeff Woldanski, AVP of Job Placement Services at Allsup Employment Services, Inc.and Tai Venuti, MPH, Allsup Mgr. of Strategic Alliances.
Most people don’t know much about Social Security Disability Insurance (SSDI), even though it is part of the largest government benefit program in the United States. For people living with a chronic illness such as lupus, understanding SSDI and its impact on health, insurance, future employment, finances and retirement income is essential. We will explain how SSDI works, including program eligibility, ways to break through the current application backlog, and specific information for individuals with lupus. Additionally, we will share how the Ticket to Work program helps people who already have SSDI return to work, and explain why the employment outlook for people with disabilities is brighter than it has been in the past.
The Lupus-Heart Connection
February 2015
Speaker: Joan M. VonFeldt, M.D., MSEd.
Heart disease and stroke are typically associated with risk factors like advancing age, smoking, gender and high blood pressure. However, these factors do not fully explain the increased risk of heart disease and stroke for people with lupus. In fact, research has shown that having lupus, and undergoing treatment can, in itself, be a substantial risk factor for heart disease and stroke.
Lupus and Stress
November 2014
Speaker:Cindy Coney
Physical and emotional stresses are among the suspected triggers for a lupus flare. People with lupus should reduce stress to help them cope with lupus and improve their overall well-being.
Download Cindy Coney's Presentation (PDF)
Lupus and Disability
October 2014
Speaker: Lisa Gonzalez Goetz, PA
Gonzalez & Goetz, LLC
This educational teleconference will help you navigate the often frustrating issues surrounding disability. You will learn what SSDI/SSI is, the qualifications, how to apply, what you need to know to be prepared and other related topics.
Download Lisa Gonzalez Goetz's Presentation (PDF)
Nutrition and Rheumatic Diseases
September 2014
Speaker: Dr. Roxanne Sukol, Cleveland Clinic
Good nutrition is an important part of an overall treatment plan for lupus. Learn how to create a nutritious, well-balanced, and varied diet that takes into account the profound effects of a network as complex as the immune system.
Download Dr. Sukol's Presentation (PDF)
Lupus and Depression
August 2014
Speaker: Beatrice Lazaroff, Ph.D.
Reactions like anger, fear and depression are a normal part of having a chronic illness such as lupus. These emotions are signals from the body and mind that all is not well and that it is time to use your coping skills. When these emotions are dealt with appropriately, they can provide an opportunity to grow and gain new insights into your life.ight.
Download Beatrice Lazaroff's Presentation (PDF)
Lupus and the Skin
July 2014
Speaker: Dr. Frank Santoro
Assistant Professor of Dermatology
University of Connecticut Health Center
Lupus on the skin can come in multiple forms with the most common findings of butterfly rashes, rashes from sunlight, and discoid lesions (scarring, disfiguring lesions). We will discuss the role of the immune, hormonal and environmental factors in the skin disease of lupus. We will review newer therapies and their efficacy in skin disease. Lastly, we will stress the importance of prevention through use of sunscreens, avoidance of the sun and clothing that blocks ultraviolet light.
Download Dr. Santoro's Presentation (PDF)
Pediatric Lupus
June 2014
Speaker: Dr. Reema Syed
Pediatric Rheumatologist
SSM Cardinal Glennon Children's Medical Center
Hearing that you have lupus, or that your child has it, can be very frightening. However, by working closely with your health care team, you can learn how to best take care of yourself and the special needs of a child with lupus. Learn about what to expect in the future for a child living with lupus.
Download Dr. Reema Syed's presentation
Vivir con Lupus
Speaker: Leyka Barbosa, M.D., F.A.C.R.
North Texas Joint Care, P.A.
Esta teleconferencia educativa incluye una introducción al manejo efectivo de la enfermedad y lo básico sobre el Lupus para alguien recién diagnosticado o persona que se pueda beneficiar. Recibirá información médica exacta y al día sobre el Lupus, sus síntomas, tratamientos y técnicas para combatir la enfermedad.
Download Dr. Leyka Barbosa's presentation
Living with Lupus: An Insider's Perspective
May 2014
Presented by: Pamela Turnbo Thorpe, MD, FACP
Board Certified in Internal Medicine and Individual Living with Lupus
Download Dr. Pamela Turnbo Thorpe's presentation
Lupus and Men
April 2014
Presented by: Joseph Shanahan, M.D., Shanahan Rheumatology & Immunotherapy
Download Dr. Shanahan's presentation
Clinical Trial Education
March 2014
Presented by: Karen Obmaces, President of Accurate Clinical Research & Linda Willies, Clinical Trial Participant for more than 7 years
Download Karen Obmaces presentation
Download Linda Willies presentation
Lupus & Intimacy
February 2014
Presented by: Lisa Covington, MSW, LCSW-C
Download the presentation (PDF)
Lupus and Employment - 02.23.13
with Rachel D. Ziolkowski, Esq.
Senior Counsel
Gruber Hurst Johansen Hail Shank LLP
Learn more about how lupus can affect life on the job, your rights in the workplace, how you can maximize security and benefits and manage stress when dealing with lupus and employment.
Download the presentation (PDF)
Managing the Doctor/Patient Relationship - 03.14.13
with Melissa Hughes, MD
Former GA Chapter Board Member
Part of thriving with lupus is effectively communicating with the members of your health care team so that your care is managed better and in the end, you feel better. As Dr.Hughes states,"You are driving the bus!"
Personal Medical Records Forms- download to help you keep track of your doctor visits, medications, allergies and much more.
Download the presentation (PDF)
Lupus and Cognitive Dysfunction – 4.18.13
with Michael Parsons, PhD
Cleveland Clinic
As many as half of all people with lupus describe feelings of confusion, fatigue, memory loss, and difficulty expressing their thoughts. This collection of symptoms is termed cognitive dysfunction. Learn more about "lupus fog", its symptoms and treatment options.
Download the presentation (PDF)
Living with Lupus – 5.11.13
with Stacy D. Kennedy, M.D., M.B.A.
Rowan Diagnostic Clinic, Salisbury, N.C.
An introduction to lupus and how to manage it effectively for the newly diagnosed or anyone who wants to gain more insight into the disease. Learn more about current, medically accurate information on lupus, its symptoms, treatments and coping techniques.
Download the presentation (PDF)
Lupus and the Kidneys - 06.20.13
with Jack Waterman, DO, FACOI
Nephrology Associates of the Palm Beaches
An estimated 1 in 3 people living with lupus will develop kidney issues that require medical attention and treatment. Learn more about the signs and symptoms, diagnosis and treatment options as it relates to kidney involvement.
Download the presentation (PDF)
Lupus and Overlapping Disease – 09.04.13
with Mark Box, MD
Kansas City Internal Medicine, St. Joseph Health Center
Although lupus most often occurs alone, many people with lupus also have characteristics of one or more of the other connective tissue diseases, such as scleroderma or rheumatoid arthritis. This is called overlap disease. Learn more about common connective tissue diseases that may overlap with a lupus diagnosis and how they are treated and managed.
Download the presentation (PDF)
Lupus and Women's Issues
with Anupama Shahane, MD, MPH
Assistant Professor of Clinical Medicine
Division of Rheumatology
University of Pennsylvania
More than 90 percent of people with lupus are women between the ages of 15 and 45. Having lupus increases your risk of other health problems that are common in women. Women living with lupus also face a variety of concerns from pregnancy to body image issues. Learn how to live better with lupus and cope with issues many women face after a lupus diagnosis.
Download the presentation (PDF)
Alternative and Complementary Therapies
with Donald E. Thomas, Jr., MD, FACP, FACR, CCD
Arthritis and Pain Associates of PG County
Learn about complementary therapies and lifestyle changes one can incorporate into their daily routine to enhance health and maximize lupus control. Patients will gain a better idea of why rheumatologists make certain recommendations about supplements, herbs, medications, and more.
Download the presentation (PDF)
With warmer weather comes an increasing concern for people experiencing skin involvement in lupus. Dr. Victoria Werth will present an overview of lupus and the skin, including the subtypes of skin lupus, proper sun protection, and treatment options.
Presenter: Dr. Victoria Werth, MD
Lupus may affect many aspects of a patient's life, including the ability to work. Disability insurance policies are designed to provide benefits for people living with severe chronic illness, and understanding your rights is the first step to maximizing your security. This presentation will help you navigate the private and group disability maze- including eligibility, filing, and qualifying.
Presenter: Alicia Paulino-Grisham
Dr.Gupta will discuss the various aspects of the kidneys and how lupus can affect them. She will cover kidney function, how kidneys can be damaged, how it is diagnosed and treatments.
Presenter: Dr. Arti Gupta, MD
This presentation will look at the features of systemic lupus erythematosus and those of people whose diagnosis overlaps with other autoimmune diseases including rheumatoid arthritis, dermatomyositis or polymyositis, scleroderma, and Sjogren syndrome. We will cover how they are similar and different, and the approaches to treatment.
Presenter: Dr. Kathleen M. O'Neil, MD
Lupus and Overlapping Connective Tissue Disease
Dr. Antonelli is a rheumatologist in the Division of Rheumatology at Case Western Reserve University Department of Medicine at Metro Health Medical Center in Cleveland, Ohio. She is an Assistant Professor of Medicine at Case Western Reserve University. She is a passionate physician that cares greatly for the lupus community. She will focus the presentation on the correlations of Joint replacement with Lupus. The goal is to give us a better understanding of the topic and learn how to live well with lupus.
Presenter: Dr. Maria Antonelli, M.D.
Joint Replacement with Lupus Presentation
Lupus affects each of us—patients and loved ones alike—and too often we struggle daily with this illness. Join Dr. Phillips for Coping with Lupus—a conversation about living better with this devastating disease. Hear techniques explained and learn new ideas and strategies, which can be tailored to meet your individual needs.
Presenter: Dr. Robert H. Phillips
Presented by Dr. Mohammad Kamran
The medications prescribed to treat lupus can range from mild to extremely strong, but all medications have side effects. Most often, several medications are used in combination to control lupus. Learn about effective communication with your doctor to ensure the best treatment plan for you.
Presented by Dr. Samuel Pegram
Dr. Samuel Pegram is a rheumatologist in Houston, Texas and is affiliated with multiple hospitals in the area. He is the principal investigator and founder of Rheumatic Disease Clinical Research Center and has practiced rheumatology for more than 20 years. Dr. Pegram has built a reputation for treating complicated cases of lupus in addition to quality clinical trials. He will be presenting on the latest lupus research that is being conducted and some of the typical requirements for enrolling to participate in a clinical trial.
Presented by Lindsay Sappah, RD LDN CNSC
Description: Good nutrition is an important part of an overall treatment plan for lupus. Learn how to create a nutritious, well-balanced, and varied diet that takes into account the profound effects of a network as complex as the immune system.
Presented by Dr. Lesley Davila
Dr. Davila has a passion to treat rheumatic diseases that are often difficult to treat and even diagnose. Join us as she discusses the importance of finding a rheumatologist by going over the history of lupus, signs, symptoms, treatments, and diagnosis.
Presented by Thomas J. Giordano Jr., Esquire
Description: If your lupus symptoms become so severe that you are unable to work, you should consider filing for Social Security Disability benefits. This presentation covers what lupus patients need to know about their rights and the filing process.
Presented by Dr. Rebecca Sadun
Learn about the different parts of the immune system that can be affected in lupus and about how lupus medications work to suppress the immune system in order to control the disease. From B cells to T cells and everything in between, this will be an "Immunology 101" session. No background in biology required.
Presented by Dr. Deborah Crabbe
Learn about the various cardiovascular disease conditions that affect people with lupus, how to prevent heart disease while living with lupus, and learn more about rheumatologic disease as a risk factor for future cardiovascular disease in women.
With Dr. Philip Khan, MD
Lupus can interfere with an adolescent development of independence, peer relationships, and day-to-day normal activities. Adolescence is stressful for healthy teens; add the stress of living with a chronic illness and adolescence can be overwhelming. This teleconference covered an overview of issues pertaining to this transitioning period.
With Dr. David Gazeley, MD, Rheumatologist, Froedtert and the Medical College of Wisconsin
Pregnancy is no longer considered an impossibility if you have lupus. Advancing technology and a better understanding of the disease and its effects on the body have improved pregnancy outcomes over the last 40 years.
Listen here: https://archive.org/embed/LupusAndPregnancy110618
With Brian Poole, Ph.D., Associate Professor, Brigham Young University
Life with lupus can be challenging. With symptoms that come and go, disease flares and remissions, and the uncertainty of what each day may bring, it's normal to experience feelings of fear, frustration, anger, or sadness. However, there is a difference between temporary negative feelings and negative feelings that become overwhelming and long-lasting, which may signal a serious but treatable illness. Join us to learn more about depression and lupus, when to seek professional help, and how to recognize and properly treat symptoms.
With Bené E. Williams, LMSW
Wellness can be defined as an “active process of becoming aware of and making choices toward a healthy and fulfilling life.” Learn tips and how to live well with lupus through self-management skills including communication, stress reduction, physical activity, a healthy diet, and personal responsibility.
With Iris Zink, MSN, RN, ANP-BC, RN-BC
Sexual problems are frequent in many people with chronic diseases. Join Iris Zink as she discusses maintaining a healthy intimate relationship despite lupus.
With Sofia Chaudhry, M.D., Adjunct Assistant Professor, Department of Dermatology, Saint Louis University School of Medicine
Approximately 2/3 of people with lupus will experience some type of effect on their skin. Learn about skin rashes and the impact of sun exposure on lupus patients. Basic treatment options and measures that can be taken to help prevent lupus skin rashes will be discussed.
With Samuel Pegram, M.D., Rheumatologist, The Rheumatic Disease Clinic of Houston
We know more about lupus research today than we did 10 years ago. Join us for this Ask the Experts Session and hear about the latest in lupus research.
With Stacy Ardoin, MD, adult and pediatric rheumatologist, OSU Wexner Medical Center, and Nationwide Children’s
Lupus is a complex and multifaceted disease. It is difficult to diagnose because each person has different symptoms of varying degrees and they mimic many other diseases. The diagnosis can take years to confirm. Join us as a lupus expert discusses the process of making a lupus diagnosis. The presentation will provide an overview of the ACR criteria, lupus signs and symptoms, and what a physician considers before making a diagnosis.
With Carrie Holley-Hurt, Holistic Health Coach
In this teleconference, Carrie Holley-Hurt will talk about the connection between diet and inflammation, and provide practical tools so you can create a diet that works for you by improving your quality of life.
With Bryce Goebel, LRMT, Empowering You to Heal Description
Stress in those living with lupus affects the mind, body, and spirit in negative ways. Reiki treats the whole person, including body, emotions, mind, and spirit, creating many beneficial effects that include chronic pain relief, reduction of negative side effects, and relaxation. Join us to learn about Reiki and how to use it to help manage your stress throughout your whole self.
With Pamela Thorpe, M.D. FACP, Lupus Survivor since 2001, Currently Medical Director of Pharmacovigilance in the Pharmaceutical Industry since 2007
As many as half of all people with lupus describe feelings of confusion, fatigue, memory loss, and difficulty expressing their thoughts. This collection of symptoms is termed cognitive dysfunction. Learn more about "lupus fog", its symptoms and treatment options.
Download the Presentation (PDF)
With George Stojan, M.D.
Heart disease is a major complication of lupus and is now a leading cause of death among people with lupus. There are several ways to decrease your risk for developing lupus-related disease, including reporting changes in symptoms to your doctor right away and having and understanding of the major risk factors. This teleconference will address everything you need to know about how to live heart healthy with lupus.
Download the presentation (PDF)
With: Austin Dalrymple, DO; Pediatric Rheumatologist & Assistant Professor of Internal Medicine and Pediatrics, Saint Louis University and SSM Health Cardinal Glennon Children’s Hospital.
As a teenager living with lupus, learning how to take charge of one’s own healthcare will assist with better health outcomes as an adult. Teens with lupus and their parents will learn more about this transitional time and receive helpful tips and tools to prepare teenagers with lupus to successfully manage their illness through the adult years.
Download the presentation (PDF)
With: Dr. Namieta Janssen, Rheumatologist from Houston, TX
This presentation is an overview on how clinical trials work, why it's beneficial to participate, and the latest trials focused on treatment for lupus.
Download the presentation (PDF)
With: Attorney R. Patrick White, LFA Georgia Chapter Board Chair
People living with lupus may not know their rights in the workplace. This teleconference will address how to work with your employer to put together a plan to prioritize your health issues and determine the types of accommodation you may need at your place of work.
With: Andrew Salata, Public Affairs Specialist, Social Security Administration
The presentation will cover an overview of Social Security Disability, from how individuals become eligible for benefits to how to complete the filing process. The presentation will review additional considerations for women receiving Social Security, and how Social Security assists families.
Download the presentation (PDF)
Presenter: Emily Rubin RD, LDN, Registered Dietitian
Thomas Jefferson University Division of Gastroenterology and Hepatology
Heart disease and stroke are typically associated with risk factors like advancing age, smoking, gender and high blood pressure. However, these factors do not fully explain the increased risk of heart disease and stroke for people with lupus. In fact, research has shown that having lupus, and undergoing treatment can, in itself, be a substantial risk factor for cardiovascular disease. You are not powerless though! One positive lifestyle change you can make to reduce your risk is to eat smart for a healthy heart. Join us and learn more about eating wisely!
Download the presentation (PDF)
Presenter: Ellen Sichel, Custom Calm, LLC
It is important to understand the relationship of oral health to overall health and wellness. Join us to learn about how dental health relates to lupus and managing symptoms.
Presenter: Diane Earle, DDS, MBA, Kool Smiles
It is important to understand the relationship of oral health to overall health and wellness. Join us to learn about how dental health relates to lupus and managing symptoms.
Presenter: Danine Fruge, MD, ABFP, Pritikin Longevity Center + Spa
Take charge of your daily life through proper disease management, communication, and positive lifestyle changes.
Presenter: Kathryn M. Diemer, MD, Washington University School of Medicine in St. Louis
Women with lupus are at increased risk for osteoporosis and are nearly five times more likely to experience a fracture. Learn more about bone density, how osteoporosis is diagnosed, and the most common treatments available including calcium, vitamin D and FDA approved medications.
Everyone should have a financial plan to protect themselves and their loved ones. Living with a chronic illness causes unique day-to-day and long-term financial challenges. The teleconference will empower and educate those living with a chronic illness, their loved ones and caretakers regarding ways to proactively organize their finances and strategically plan for their unpredictable circumstances.
Speaker:Arti Gupta, M.D., Dallas Nephrology Associates, Dallas, Texas
Lupus nephritis is the term used when lupus causes inflammation in the kidneys. It is estimated that as many as 40 percent of all people with lupus will develop kidney complications that require medical evaluation and treatment. Dr. Arti Gupta will address diagnosis, monitoring, kidney complications, kidney biopsy, kidney treatment, and kidney prognosis.
Listen to the Recording:
Lupus de los Riñones
Speaker:Carlos Pancorvo, M.D., Dallas Nephrology Associates, Dallas, Texas
Lupus nefritis es el término usado cuando el lupus provoca inflamación en los riñones. Se estima que hasta el 40 por ciento de todas las personas con lupus desarrollarán complicaciones renales que requieren tratamiento y evaluación médica. El Dr. Carlos Pancorvo hablará de el diagnóstico, visitas medicas, complicaciones renales, biopsia renal, tratamiento renal y pronóstico renal.
Listen to the Recording:
Speaker: Robert H. Phillips, Ph. D.
When you are first diagnosed with lupus, you will hear about treatment options and the importance of preventing flares—but you may not hear that lupus can have an emotional effect on you as well. You may feel overwhelmed, frustrated, sad, and anxious, but the good news is there are ways to help you cope with those feelings. Join us for this teleconference with Robert H. Phillips, Ph.D., founder and director of the Center for Coping, author of the Coping with Lupus and Lupus Q&A books and a licensed psychologist as he addresses important questions one might have and offers practical coping strategies to help those with lupus live their lives to the fullest.
Listen to the Recording:
Speaker:Amber R. Cooper, MD, MSCI
Women living with lupus face a variety of challenges regarding their reproductive health. Dr. Amber R. Cooper, board certified in Obstetrics and Gynecology and Reproductive Endocrinology and Infertility, will discuss how lupus, and the medication used to treat the disease, can affect menstrual function, pregnancy, contraception, menopause, and fertility.
Listen to the Recording:
Speaker:Victoria P. Werth, MD, University of Pennsylvania School of Medicine
Approximately two-thirds of people with lupus will develop some type of skin disease, called cutaneous lupus erythematosus. Skin disease in lupus can cause rashes or sores (lesions), most of which will appear on sun-exposed areas such as the face, ears, neck, arms, and legs. Listen to hear Dr. Victoria Werth discuss how lupus can affect your skin and effective treatment options.
Listen to the Recording:
Speaker:Angela Kyei, MD
A lupus diagnosis often brings many physical changes, including hair loss. Hair loss is a common side effect of lupus and can be caused by medications used to treat the disease. Join us to hear Angela Kyei, M.D. speak on hair loss and ways to be proactive in treating it.
Speaker:Donald Thomas, M.D., FACP, FACR, CCD
Join us for this teleconference with Donald Thomas, M.D., FACP, FACR, CCD, author of “The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families” as he discusses how to live well with lupus through coping techniques, educating yourself and his “lupus secrets”.
Download Lupus Secrets Handout
Speaker: Ricardo N. Sepulveda, M.D.
Dr. Ricardo Sepulveda will discuss how autoimmune diseases including lupus affect the eyes. The effects lupus may have in and around the eyes include changes in the skin around the eyelids, dry eyes, inflammation of the white outer layer of the eyeball (scleritis), blood vessel changes in the retina, or damage to nerves in the muscles controlling eye movement and the nerves affecting vision.
Speakers: Jeff Woldanski, AVP of Job Placement Services at Allsup Employment Services, Inc.and Tai Venuti, MPH, Allsup Mgr. of Strategic Alliances.
Most people don’t know much about Social Security Disability Insurance (SSDI), even though it is part of the largest government benefit program in the United States. For people living with a chronic illness such as lupus, understanding SSDI and its impact on health, insurance, future employment, finances and retirement income is essential. We will explain how SSDI works, including program eligibility, ways to break through the current application backlog, and specific information for individuals with lupus. Additionally, we will share how the Ticket to Work program helps people who already have SSDI return to work, and explain why the employment outlook for people with disabilities is brighter than it has been in the past.
Speaker: Joan M. VonFeldt, M.D., MSEd.
Heart disease and stroke are typically associated with risk factors like advancing age, smoking, gender and high blood pressure. However, these factors do not fully explain the increased risk of heart disease and stroke for people with lupus. In fact, research has shown that having lupus, and undergoing treatment can, in itself, be a substantial risk factor for heart disease and stroke.
Speaker:Cindy Coney
Physical and emotional stresses are among the suspected triggers for a lupus flare. People with lupus should reduce stress to help them cope with lupus and improve their overall well-being.
Download Cindy Coney's Presentation (PDF)
Speaker: Lisa Gonzalez Goetz, PA
Gonzalez & Goetz, LLC
This educational teleconference will help you navigate the often frustrating issues surrounding disability. You will learn what SSDI/SSI is, the qualifications, how to apply, what you need to know to be prepared and other related topics.
Download Lisa Gonzalez Goetz's Presentation (PDF)
Speaker: Dr. Roxanne Sukol, Cleveland Clinic
Good nutrition is an important part of an overall treatment plan for lupus. Learn how to create a nutritious, well-balanced, and varied diet that takes into account the profound effects of a network as complex as the immune system.
Download Dr. Sukol's Presentation (PDF)
Speaker: Beatrice Lazaroff, Ph.D.
Reactions like anger, fear and depression are a normal part of having a chronic illness such as lupus. These emotions are signals from the body and mind that all is not well and that it is time to use your coping skills. When these emotions are dealt with appropriately, they can provide an opportunity to grow and gain new insights into your life.ight.
Download Beatrice Lazaroff's Presentation (PDF)
Speaker: Dr. Frank Santoro
Assistant Professor of Dermatology
University of Connecticut Health Center
Lupus on the skin can come in multiple forms with the most common findings of butterfly rashes, rashes from sunlight, and discoid lesions (scarring, disfiguring lesions). We will discuss the role of the immune, hormonal and environmental factors in the skin disease of lupus. We will review newer therapies and their efficacy in skin disease. Lastly, we will stress the importance of prevention through use of sunscreens, avoidance of the sun and clothing that blocks ultraviolet light.
Download Dr. Santoro's Presentation (PDF)
Speaker: Dr. Reema Syed
Pediatric Rheumatologist
SSM Cardinal Glennon Children's Medical Center
Hearing that you have lupus, or that your child has it, can be very frightening. However, by working closely with your health care team, you can learn how to best take care of yourself and the special needs of a child with lupus. Learn about what to expect in the future for a child living with lupus.
Download Dr. Reema Syed's presentation
Presented by: Pamela Turnbo Thorpe, MD, FACP
Board Certified in Internal Medicine and Individual Living with Lupus
Download Dr. Pamela Turnbo Thorpe's presentation
Vivir con Lupus
Speaker: Leyka Barbosa, M.D., F.A.C.R.
North Texas Joint Care, P.A.
Esta teleconferencia educativa incluye una introducción al manejo efectivo de la enfermedad y lo básico sobre el Lupus para alguien recién diagnosticado o persona que se pueda beneficiar. Recibirá información médica exacta y al día sobre el Lupus, sus síntomas, tratamientos y técnicas para combatir la enfermedad.
Download Dr. Leyka Barbosa's presentation
Presented by: Joseph Shanahan, M.D., Shanahan Rheumatology & Immunotherapy
Download Dr. Shanahan's presentation
Presented by: Karen Obmaces, President of Accurate Clinical Research & Linda Willies, Clinical Trial Participant for more than 7 years
Download Karen Obmaces presentation
Download Linda Willies presentation
Presented by Donald E. Thomas, Jr., MD, FACP, FACR, CCD
Arthritis and Pain Associates of PG County
Learn about complementary therapies and lifestyle changes one can incorporate into their daily routine to enhance health and maximize lupus control. Patients will gain a better idea of why rheumatologists make certain recommendations about supplements, herbs, medications, and more.
Download the presentation (PDF)
Presented by Anupama Shahane, MD, MPH
Assistant Professor of Clinical Medicine
Division of Rheumatology
University of Pennsylvania
More than 90 percent of people with lupus are women between the ages of 15 and 45. Having lupus increases your risk of other health problems that are common in women. Women living with lupus also face a variety of concerns from pregnancy to body image issues. Learn how to live better with lupus and cope with issues many women face after a lupus diagnosis.
Presented by Mark Box, MD
Kansas City Internal Medicine, St. Joseph Health Center
Although lupus most often occurs alone, many people with lupus also have characteristics of one or more of the other connective tissue diseases, such as scleroderma or rheumatoid arthritis. This is called overlap disease. Learn more about common connective tissue diseases that may overlap with a lupus diagnosis and how they are treated and managed.
Presented by Jack Waterman, DO, FACOI
Nephrology Associates of the Palm Beaches
An estimated 1 in 3 people living with lupus will develop kidney issues that require medical attention and treatment. Learn more about the signs and symptoms, diagnosis and treatment options as it relates to kidney involvement.
Presented by Stacy D. Kennedy, M.D., M.B.A.
Rowan Diagnostic Clinic, Salisbury, N.C.
An introduction to lupus and how to manage it effectively for the newly diagnosed or anyone who wants to gain more insight into the disease. Learn more about current, medically accurate information on lupus, its symptoms, treatments and coping techniques.
Presented by Michael Parsons, PhD
Cleveland Clinic
As many as half of all people with lupus describe feelings of confusion, fatigue, memory loss, and difficulty expressing their thoughts. This collection of symptoms is termed cognitive dysfunction. Learn more about "lupus fog", its symptoms and treatment options.
Presented by Melissa Hughes, MD
Former GA Chapter Board Member
Part of thriving with lupus is effectively communicating with the members of your health care team so that your care is managed better and in the end, you feel better. As Dr.Hughes states,"You are driving the bus!"
Personal Medical Records Forms- download to help you keep track of your doctor visits, medications, allergies and much more.
Presented by Rachel D. Ziolkowski, Esq.
Senior Counsel
Gruber Hurst Johansen Hail Shank LLP
Learn more about how lupus can affect life on the job, your rights in the workplace, how you can maximize security and benefits and manage stress when dealing with lupus and employment.
Download the presentation (PDF)