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Thirty-One Faces of Hope: Altonia Dugar

The lupus community includes people living with lupus, friends, family and supporters across Georgia. For Lupus Awareness Month, we would like to highlight some of our lupus heroes and champions. 


Meet Altonia Dugar

On July 9, 2010, I received the official diagnosis of Lupus. It seemed like sickness had always been a constant companion throughout my life. The pregnancies of my second and third children were marked as high risk, with doctors puzzled by my symptoms. My mother, a retired nurse, would caution me against the sun as a kid, convinced I was having an allergic reaction to it. As I grew older, I became meticulous about caring for my skin, constantly battling rashes and lesions, spending a small fortune on skincare products and makeup to hide the scars.

After consulting with three dermatologists, I finally found Dr. Callender, who recognized the signs of a Lupus flare. At that moment, I was introduced to a term I had never heard before. The shock was overwhelming; there was no family history, no established treatment plan, and limited information available. But at least now, I had a name for the mysterious illness that had plagued me for so long.

However, with diagnosis came uncertainty. No one could agree on a treatment plan, leaving me to face a future filled with questions and fear. It was a daunting task to tell my family about my chronic illness, especially when they asked, “are you going to be, ok?” And all I could say was, "I don't know."

At the time of diagnosis, my life was bustling with activity. I was employed full-time, juggling roles as a wife, mother, and eventually grandmother, while also running a successful natural hair blog and social club. But amidst the chaos, I found myself thrust into advocacy by sheer necessity.

Frustrated by the constant inquiries about my health, I decided to speak out. I penned a blog post titled "My name is Mz. Sixx and I have Lupus," and the response was overwhelming. People were curious, eager to lend support, and hungry for information. Thus began my accidental journey as an advocate.

I joined the Lupus Foundation of America's Walk in Washington, DC, and Baltimore, MD rallying support from friends and followers. But walking and online discussions felt insufficient. In 2012, I launched the #selfies4Lupus campaign in collaboration with Walgreens, spreading awareness one selfie at a time.

Despite my initial fears, I found myself speaking publicly about Lupus, baring my soul and my skin for all to see. It was a liberating experience that shattered the shame I had carried for so long. I became known as The Lupie Chick in my community, using every platform available to raise awareness and empower others to advocate for themselves.

Today, I am in control of my Lupus, living a healthy lifestyle and pursuing my passions. I am the proud owner of two businesses, thriving despite the challenges I face. My journey has been marked by inner strength, determination, and unwavering support from those who love me. Lupus may be a part of my story, but it does not define me.


Thank You to Our Generous Sponsor

 

Choosing to prioritize your kidney health might be uncomfortable, but the reality is that up to 30% of people who live with lupus nephritis may experience kidney failure, which can lead to dialysis or even a kidney transplant. Luckily, there are steps you can take now that may help, such as scheduling routine tests and asking your doctor about treatment options. Talk to your doctor to learn more about routine testing and treatment.

Learn more about their GET UNCOMFORTABLE campaign.