Advocacy for Research
We work with the federal government to ensure they are doing everything in their power to advance our understanding of lupus and accelerate the search for new treatments. We’ve been at the center of every lupus research breakthrough since 1977, and with the help of our advocates, we’ll be at the center of the next one.
The federal government is one of the most significant sources of funding for lupus research. As part of our comprehensive research strategy, we advocate expanding appropriations for all federal agencies involved in lupus to fund more studies.
Learn how you can help bring greater attention and resources to end the devastating impact of lupus through our advocacy initiatives.
Our advocacy created the Lupus Research Program at the Department of Defense (DoD). This program has obtained $66.7 million in congressional funding for the DoD to conduct lupus research that will address critical medical needs.
DoD Lupus Research ProgramOur advocacy has helped NIH become the largest public funder of lupus research in the world.
In 2003, we worked with Congress to establish the National Lupus Patient Registry at the Centers for Disease Control and Prevention (CDC). Since then, we’ve secured more than $91 million in funding that will allow it to grow and continue providing valuable data for researchers.
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We've been present at every step of the Food and Drug Administration's initiative to better incorporate the patient voice into their drug approval and regulatory process, and we'll continue to work with the agency to ensure their efforts are informed by the needs of people with lupus.
Researchers face many challenges along the way, from how a trial is designed to how to measure improvements. We worked with lupus experts to develop consensus recommendations and presented different methods of assessing and measuring the benefits of clinical trials to the FDA.
Sign up as a lupus advocate to learn how you can raise your voice in support of better, smarter lupus research.