Providing Answers, Support and Hope in Kansas, Missouri, and Central & Southern Illinois
Right now, there are not enough drugs to treat lupus. The process of developing a new drug takes 10-11 years and involves hundreds of people with lupus. If you have lupus, you can volunteer to take part in research that will improve the lives of people with lupus today and the health of future generations.
What does it mean to volunteer for research? We have resources that explain the different kinds of lupus research, how research works, and why you should get involved.
Watch this video and learn about different types of research, what you need to understand before agreeing to participate, standard of care during a clinical trial, and associated costs.
Lupus is more common – and usually more severe – in people of color, so it’s especially important that lupus studies include racially and ethnically diverse populations. Without the participation of women and men of color, scientists cannot test how potential new treatments work for them. Unfortunately, people in these groups are often underrepresented in lupus research.
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Your participation in research will help scientists develop more accurate tests, discover better treatments, and find a cure to end the suffering caused by lupus.